Angela D

San Diego Photos & Links: ID Week Lyme Disease Rally and Vigil October 2015

San Diego Photos & Links: ID Week Lyme Disease Rally and Vigil October 2015

Last month, Lyme disease patients and patient supporters gathered outside the annual ID Week conference sponsored by the Infectious Disease Society of America (IDSA) to protest the IDSA’s Lyme disease treatment guidelines and their role in obstructing patient access to proper testing, treatment, and insurance coverage. The conference is attended annually by physicians, researchers, and […]

Lyme Denialism and IDSA/CDC Misinformation Campaign ~ Recent Article Links

Lyme Denialism and IDSA/CDC Misinformation Campaign ~ Recent Article Links

I’ve linked to articles in the past that I felt were particularly valuable for understanding or conveying why there is controversy surrounding Lyme disease diagnosis and treatment (not a small or simple topic).  I’ll re-link to some of those here as well, but first, here are some very recent must reads to that end.  They will […]

Invisible Illness, Depression, and Speaking Out ~ Guest Post by Erika Morgan

It’s time to ‘stamp out stigma’ placed upon people with mental illnesses…Speak out for those who feel they cannot speak out for themselves. The following article, as with the two guest posts before it, began as a heart-felt facebook post that resonated with friends and patients quickly.  As with those previous two, it warranted additional […]

ILADS peer reviewed Lyme Guidelines appropriately added to National Guideline Clearinghouse: preliminary context notes and relevant links

ILADS peer reviewed Lyme Guidelines appropriately added to National Guideline Clearinghouse: preliminary context notes and relevant links

As most Lyme patients are aware, patients, physicians and medical practitioners seeking Lyme disease treatment information will only see one set of Lyme treatment guidelines referred to by the CDC.  The problematic guidelines they will find, authored by the Infectious Disease Society of America (IDSA), create obstacles to diagnosis and care that leave thousands of […]

“Today I just grieve…” ~ Guest Post by Rory Hubert Kahn

“Today I just grieve…” ~ Guest Post by Rory Hubert Kahn

Originally posted on facebook, shared here with the author’s kind permission Some days are so hard. Please continue your prayers for my friend, Bambi, who is fighting ‘like a girl’ to recover from her second Lyme stroke. She’s got a long way to go and more hard battles to fight. Her beautiful face will return […]

‪#‎NationalSuicidePreventionDay‬ ~ Guest Post from Jordan Landerman

‪#‎NationalSuicidePreventionDay‬ ~ Guest Post from Jordan Landerman

‪#‎NationalSuicidePreventionDay‬ ~ Cross posted from Facebook with the Author’s kind permission, artwork also by the author, Jordan Landerman Yesterday I posted a status, and had some interesting responses. I essentially “came out” as suicidal. This isn’t the first time I’ve made this known to people, but it’s the first time I’ve blatantly posted it on social […]

Mary Beth Pfeiffer Article in Poughkeepsie Journal: Review of Lyme disease treatment leaves out patients

Mary Beth Pfeiffer Article in Poughkeepsie Journal: Review of Lyme disease treatment leaves out patients

If you only share one article this month (or even this year) about Lyme disease, consider this one. I’ve describe multiple articles lately as ‘must read’ and I’ve got a great many more to catch up on.  This one, however, is a must, must, must share and a must link-to in addition to being a must […]