Tag Archive | CDC
Letters To Strangers 2016 ~ Montana Letter
This effort was discussed in my recent post about my trip to DC last week, and is described in further detail in a post from May of last year. My letter was updated this year and some of the Montana patients active with Northern Rockies Lyme Disease Coalition efforts shared their photos to help further […]
May 2016 Trip to Capitol Hill, IDSA Headquarters, and Lyme Policy and Science Forum
Each May, The Mayday Project hosts a rally outside of the Infectious Disease Society of America’s Headquarters in Arlington, VA, to raise public awareness for Lyme Disease and for the damage being done by the outdated and dangerously flawed IDSA Lyme Disease Treatment Guidelines, and to fight for change. Patients travel from around the region […]
Why Montanans are calling Congress Jan. 26/27
We are spread-out, disenfranchised, devastated moms, dads, students, and children…..former participants in lives we now just watch go by.
Lyme Denialism and IDSA/CDC Misinformation Campaign ~ Recent Article Links
I’ve linked to articles in the past that I felt were particularly valuable for understanding or conveying why there is controversy surrounding Lyme disease diagnosis and treatment (not a small or simple topic). I’ll re-link to some of those here as well, but first, here are some very recent must reads to that end. They will […]
PostStar Link ~ Must Read Commentary by Holly Ahern
Commentary: Diagnosis, treatment of Lyme Disease controversial May 24, 2015 As an advocacy organization, Lyme Action Network (of which I am co-founder) does not “support” medical guidelines. LAN does, however, support the rights of patients to be advised that there is more than one evidence-based, medically recognized standard of care for Lyme disease, and that […]
Tweeting the Surgeon General for #NPHW ~ Kudos to Patients for Great Questions
It took more energy than I had to submit what I could for IDSA’s comment period on it’s final day. It was not an easy process, and I am still exhausted and recovering. So many things happened yesterday that the events will likely spill into multiple posts and will be things we remember for a […]
Personal Overview of the IDSA ‘Public Comment’ Period ~ Part 1
We all know how important this is. Not all patients know all the pieces or felt ready or physically or mentally able to respond directly. I’ve had firm plans to submit my own comments, as well as question suggestions (based on IDSA President Calderwood’s statements following his meeting with The MayDay Project), and to respond […]
My Son’s New Year’s Resolution for Lyme Awareness
My son’s teacher took the time to type and email my son’s resolution from a project in class, and it truly melts my heart. It’s certainly not easy for either of my kids to have a mom with Lyme disease. Christopher’s Resolution ~ (9 years old, 3rd grade) My New Year’s resolution is to finally […]
Map of Montana Canine Lyme Cases in My Local Area
Lyme disease is under-reported in animals in Montana (and everywhere), as it is in people. But, interestingly enough dogs are routinely tested and treated in areas where people are not. Many people have treated their dog for Lyme disease where I live, which is why it catches many people off guard to hear that the […]
Invisibly Lyme Montana 
Mary Beth Pfeiffer Article in Poughkeepsie Journal: Review of Lyme disease treatment leaves out patients
If you only share one article this month (or even this year) about Lyme disease, consider this one. I’ve describe multiple articles lately as ‘must read’ and I’ve got a great many more to catch up on. This one, however, is a must, must, must share and a must link-to in addition to being a must […]