Tag Archive | Chronic Lyme

Letters To Strangers 2016 ~ Montana Letter

Letters To Strangers 2016 ~ Montana Letter

This effort was discussed in my recent post about my trip to DC last week, and is described in further detail in a post from May of last year.  My letter was updated this year and some of the Montana patients active with Northern Rockies Lyme Disease Coalition efforts shared their photos to help further […]

Yolanda Foster Bashing Doctor-Author Forgot To Research Lyme Disease (Part Two)

Yolanda Foster Bashing Doctor-Author Forgot To Research Lyme Disease (Part Two)

Misinformation about Lyme disease dangerously skews public perceptions of patients, in addition to perceptions of the disease, further alienating thousands of patients from families, friends and careers, as well as appropriate healthcare.

Why Montanans are calling Congress Jan. 26/27

Why Montanans are calling Congress Jan. 26/27

We are spread-out, disenfranchised, devastated moms, dads, students, and children…..former participants in lives we now just watch go by.

Lyme Denialism and IDSA/CDC Misinformation Campaign ~ Recent Article Links

Lyme Denialism and IDSA/CDC Misinformation Campaign ~ Recent Article Links

I’ve linked to articles in the past that I felt were particularly valuable for understanding or conveying why there is controversy surrounding Lyme disease diagnosis and treatment (not a small or simple topic).  I’ll re-link to some of those here as well, but first, here are some very recent must reads to that end.  They will […]

Mary Beth Pfeiffer Article in Poughkeepsie Journal: Review of Lyme disease treatment leaves out patients

Mary Beth Pfeiffer Article in Poughkeepsie Journal: Review of Lyme disease treatment leaves out patients

If you only share one article this month (or even this year) about Lyme disease, consider this one. I’ve describe multiple articles lately as ‘must read’ and I’ve got a great many more to catch up on.  This one, however, is a must, must, must share and a must link-to in addition to being a must […]

PostStar Link ~ Must Read Commentary by Holly Ahern

PostStar Link ~ Must Read Commentary by Holly Ahern

Commentary: Diagnosis, treatment of Lyme Disease controversial May 24, 2015 As an advocacy organization, Lyme Action Network (of which I am co-founder) does not “support” medical guidelines. LAN does, however, support the rights of patients to be advised that there is more than one evidence-based, medically recognized standard of care for Lyme disease, and that […]

IDSA Lyme Guidelines ~ Background Resources (with Notes for Comment Period)

Foreward ~ I’m so behind on my own comments, and the deadline for the IDSA Public Comment period is so fast approaching, that multiple posts with relevant or even related content or links are going to published in a rough state, including things like un-formatted and un-annotated lists of links, just to get the information out […]