Lyme Stories

A Husband’s Advice ~ If A Loved One Has Lyme

A Husband’s Advice ~ If A Loved One Has Lyme

This is real, realer than you can imagine and leaving or not believing just proves the belief that it is not real. STAY. UNDERSTAND. FIGHT. LOVE. You cannot fix it, but you can make it better by simply STAYING and FIGHTING with your loved one.

Letters To Strangers 2016 ~ Montana Letter

Letters To Strangers 2016 ~ Montana Letter

This effort was discussed in my recent post about my trip to DC last week, and is described in further detail in a post from May of last year.  My letter was updated this year and some of the Montana patients active with Northern Rockies Lyme Disease Coalition efforts shared their photos to help further […]

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Yolanda Foster Bashing Doctor-Author Forgot To Research Lyme Disease (Part Two)

Yolanda Foster Bashing Doctor-Author Forgot To Research Lyme Disease (Part Two)

Misinformation about Lyme disease dangerously skews public perceptions of patients, in addition to perceptions of the disease, further alienating thousands of patients from families, friends and careers, as well as appropriate healthcare.

Styling  a  Lyme  Bill ~ Washington Guest Post by Hannah Elise Miller Kato

Styling  a  Lyme  Bill ~ Washington Guest Post by Hannah Elise Miller Kato

What  do  you  wear  to  witness  the  signing  of  a  state  bill  by  the  Governor?  As  I  picked  over  my  closet  I  thought about  how  I  arrived  at  this  day.  I  thought  about  my  long  fight  over  the  last  ten  plus  years.  I  thought  about  it all;  the  sleepless  nights,  the  progressive  symptoms  that  waxed […]

Prologue ~ Guest Series from Washington’s Recognizing Chronic Lyme Bill Supporters

Prologue ~ Guest Series from Washington’s Recognizing Chronic Lyme Bill Supporters

Washington’s SB 5448, Recognizing Chronic Lyme was signed Friday, April 24, by Governer Inslee.  There will be more steps in the future, but the signing makes way for some of the stories from the inspiring patients that supported this bill. I love to share other people’s stories and other people’s work, and the patients advocating […]

“To My Family, Friends, and Acquaintances” ~ A Lyme Letter

“We are not lazy, crazy or taking advantage. We research, and bombard you with information because we want you to understand. We want your support. We stand up for ourselves, and promote awareness because if we don’t, who will?” This letter was shared with the members of the 1,000 Letters Lyme Campaign, and is posted here […]

Go Fund Me Link ~ Please Help (And Pray For) Heather Haynes

Go Fund Me Link ~ Please Help (And Pray For) Heather Haynes

Friend/Patient/Advocate In Need of Assistance ~ Heather Haynes Go Fund Me Link ~

Debby Jo’s Letter ~ 1,000 Letters Campaign

This is another patient’s letter from the 1,000 Letters Lyme Campaign, posted with permission. See also Kristine’s Letter, Heather’s Letter, My Letter, the 1,000 Letters tab under ‘On-going Campaigns’ or find the group on facebook (The 1,000 Letters Lyme Campaign) to request membership (you can participate without being on facebook).  More stories will be published over time, […]

“Hope and Healing with Lyme Disease” ~ Riley’s Story (Video to Share)

“So whatever we’re in in the moment, sometimes it’s hard to imagine what’s coming….” ~Riley’s Mother, towards the end of the video

Dana’s (Video) Story ~ Sound Familiar?

“Courage isn’t having the strength to go on…it’s going on when you don’t have the strength.” This is the face of courage and hope! (Posted with permission…..scroll down AFTER you watch the video for something you will be very happy to know)

Kristine’s Letter ~ 1,000 Letters Lyme Campaign

This is another patient’s letter from the 1,000 Letters Lyme Campaign, posted with permission. See also Heather’s Letter, My Letter, or visit the group on facebook (The 1,000 Letters Lyme Campaign) to request membership (you can participate without being on facebook).  More stories will be published over time, but these are just a few examples of […]

Heather’s Letter ~ Patient Stories Beyond Montana

The following is one of hundreds of letters written so far as part of an awareness campaign, published with the author’s permission. She has since contributed significantly to spreading of other ongoing Lyme campaigns through social media networking and is soon to embark on the next phase of her lyme journey by beginning care with […]

Asking IDSA for Change ~ Video is Up: Lyme Disease IDWeek Protest Philadelphia 2014

Saturday’s protest included Lyme patients and loved ones from across the country, together to ask IDSA to revise guidelines for Lyme disease diagnosis, treatment, and care. Too many patients are misdiagnosed, their care delayed and lives destroyed. IDSA needs to incorporate current available science…

Please Share Courtney’s Lyme Campaign ~ An 11-Year Old’s Class Project

Please Share Courtney’s Lyme Campaign ~ An 11-Year Old’s Class Project

I’m posting this for Courtney Prew, who is working on a class project raising awareness for Lyme disease for her Mom, Heather Prew, who is fighting chronic Lyme.  They’ve already touched a bunch of Lymies since starting this (and made a bunch of us cry!!!) ~ please help Courtney reach many more!  If you share […]

Gratitude Post ~ Everything I Wanted

Gratitude Post ~ Everything I Wanted

Before I contracted Lyme disease along the Middle Fork of the Flathead River in northwest Montana, I had everything I wanted.  I had pretty much reached all of the major goals I had set for myself and then some. Not only had I gotten into (and completed) graduate school, but I had done so under […]

Success Story ~ Formerly House-Bound Lymie Nathan DeJong Completes Obstacle Race

Just two years ago, Nathan DeJong was confined to his house by Lyme disease. He’s since gone through three pairs of shoes in one year and completed an obstacle race, inspiring hundreds of patients. I am re-posting the contents a Facebook group post here, with permission, because even within the first hour or two posted […]

Long-Term Lyme: Were You Diagnosed With Lyme Disease First, or Something Else?

Long-Term Lyme: Were You Diagnosed With Lyme Disease First, or Something Else?

For millions of patients, like me and the dozens of other patients that shared varying degrees of their situations and stories here, still fighting Lyme Disease years after our initial infection, it is emotionally difficult to read or hear that our disease ‘does not exist’.  We need a larger percentage of doctors and the general public […]

1986 Lyme Persistence Study is Just One Example of Relevant Available Science

1986 Lyme Persistence Study is Just One Example of Relevant Available Science

This post is a lengthy introduction to a study published in 1986 that speaks directly to the issue of the persistence of Lyme infection. This is one of many studies addressing this question (Lymedisease.org has a useful pdf list of similar evidence) in the past three or more decades. Yet many high profile doctors and […]