Lyme Legislation
May 2016 Trip to Capitol Hill, IDSA Headquarters, and Lyme Policy and Science Forum
Each May, The Mayday Project hosts a rally outside of the Infectious Disease Society of America’s Headquarters in Arlington, VA, to raise public awareness for Lyme Disease and for the damage being done by the outdated and dangerously flawed IDSA Lyme Disease Treatment Guidelines, and to fight for change. Patients travel from around the region […]
Styling a Lyme Bill ~ Washington Guest Post by Hannah Elise Miller Kato
What do you wear to witness the signing of a state bill by the Governor? As I picked over my closet I thought about how I arrived at this day. I thought about my long fight over the last ten plus years. I thought about it all; the sleepless nights, the progressive symptoms that waxed […]
Prologue ~ Guest Series from Washington’s Recognizing Chronic Lyme Bill Supporters
Washington’s SB 5448, Recognizing Chronic Lyme was signed Friday, April 24, by Governer Inslee. There will be more steps in the future, but the signing makes way for some of the stories from the inspiring patients that supported this bill. I love to share other people’s stories and other people’s work, and the patients advocating […]
Emails Requested ~ WA Lyme Bill Goes to Gov. Inslee For Signature (SB 5448)
Washington organizers, including Co-sponsor Dan Boeholt, have requested assistance in the form of gentle emails of support to Governor Inslee requesting that SB 5448 be singed into law. Below are two requests that say it well, followed by a brief update and links for further background on the Bill, including follow up on last week’s exciting margin […]
Reminder/Request ~ Email WA Health Care Committee (Supporting Chronic Lyme Bill SB 5448)
If you have not already done so please take a few minutes to write the Health Care Committee asking for their support on this very important Bill (Recognizing Chronic Lyme Disease). I was raised in Washington, have a large number of friends and family in Washington, and travel to Washington for treatment of Chronic Lyme […]
WA Lyme Bill 5448 Unanimously Passes Senate Floor, Moves to House Hearing ~ Please Email Committee
Bill supporters in Washington and beyond have been ecstatic all week, since Washington Lyme Disease Advocate and Bill co-auther Dan Boeholt’s announcement that WA Bill 5448 (a Bill to Recognize Chronic Lyme Disease) has passed unanimously on the Senate floor and moves to House Hearing! I had high hopes for this Bill being supported, but unanimous […]
Lyme in Oregon ~ Task Force Announces Draft Proposed Lyme Bill
A subcommittee of the Oregon Lyme Leaders (the Oregon Lyme Leaders Task Force) has been working toward draft legislation, drawing on months of collaboration and, for some or all members, years of preparation. The task force has used data from studies and surveys which were spearheaded by Oregon Lyme Disease Network over the last ten […]
Please Email Senators by Feb 20 ~ WA Proposed Lyme Bill S.B. 5448 Updates ~ Action Needed!
Please write Washington state Senators immediately to show your support! This post forwards the requests of Washington Lyme activists and organizers (with clear and specific steps to take), including the Lyme Disease Seattle WA Support Group, Ticked Off On Lyme WA, and Dan Boeholt (Bill coauthor). Pre-Notes For Residents/Non-Residents: Residents: The links below make it […]
Support French Lyme Patients ~ Send Support For Proposition N° 2291
I’ve posted twice lately about state-specific proposed legislation (Massachusetts and Washington) because even letters from out of state expressing information and support for better care have been catching representatives’ attention and helping the Lyme-patient-residents of those states. There is also, it turns out, a French Proposition (draft included below) that will soon go before the French […]
Washington Proposed S.B. 5448 Would Allow Long Term Antibiotic Treatment For Lyme Disease
Proposed legislation in Washington, S.B. 5448, was read during regular session on January 21, 2015, and referred to the Senate Health Care Committee, scheduled for hearing on February 2. The bill would allow specified practioners to treat patients dianosed with Lyme Disease using long term antibiotics, “for a therapeutic purpose that eliminates infections or controls the […]
Email Massachusetts Senators (How and Why) Re H.D. 469 ~ Insurance Coverage for Lyme
“There is currently a two-week window during which representatives can decide if they want to support the proposed bill known as: H.D. 469 An Act Relative to Lyme Disease Treatment Coverage, so we need to act quickly.” The who, what and how of this issue was very well said and accounted for in a […]
Proposed Lyme Legislation H.R. 4701 (Gibson Bill) Links and Updates: Post-House, Pre-Senate
Last week H.R. 4701 (The Tick-borne Disease Research Transparency and Accountability Act of 2014) passed the house. The bill is also known as the Gibson Bill, after the bill’s author, New York Senator Chris Gibson. Per Lyme disease.org: H.R. 4701 forms an interagency working group consisting of federal agencies and non-federal partners, including experienced Lyme physicians […]
Recent Article, 1,000 Letters Campaign, Lyme Bill, and Social Media Updates
There’s too much happening right now to write about very much of it. I drove cross country last month to bring home our new car (a hail damaged car we drove back from Virginia, more here). I’m fairly tired, having returned home just before the start of school. It was a long trip due to […]
Invisibly Lyme Montana 