Lyme Legislation

May 2016 Trip to Capitol Hill, IDSA Headquarters, and Lyme Policy and Science Forum

May 2016 Trip to Capitol Hill, IDSA Headquarters, and Lyme Policy and Science Forum

Each May, The Mayday Project hosts a rally outside of the Infectious Disease Society of America’s Headquarters in Arlington, VA, to raise public awareness for Lyme Disease and for the damage being done by the outdated and dangerously flawed IDSA Lyme Disease Treatment Guidelines, and to fight for change.  Patients travel from around the region […]

Styling  a  Lyme  Bill ~ Washington Guest Post by Hannah Elise Miller Kato

Styling  a  Lyme  Bill ~ Washington Guest Post by Hannah Elise Miller Kato

What  do  you  wear  to  witness  the  signing  of  a  state  bill  by  the  Governor?  As  I  picked  over  my  closet  I  thought about  how  I  arrived  at  this  day.  I  thought  about  my  long  fight  over  the  last  ten  plus  years.  I  thought  about  it all;  the  sleepless  nights,  the  progressive  symptoms  that  waxed […]

Prologue ~ Guest Series from Washington’s Recognizing Chronic Lyme Bill Supporters

Prologue ~ Guest Series from Washington’s Recognizing Chronic Lyme Bill Supporters

Washington’s SB 5448, Recognizing Chronic Lyme was signed Friday, April 24, by Governer Inslee.  There will be more steps in the future, but the signing makes way for some of the stories from the inspiring patients that supported this bill. I love to share other people’s stories and other people’s work, and the patients advocating […]

Emails Requested ~ WA Lyme Bill Goes to Gov. Inslee For Signature (SB 5448)

Emails Requested ~ WA Lyme Bill Goes to Gov. Inslee For Signature (SB 5448)

Washington organizers, including Co-sponsor Dan Boeholt, have requested assistance in the form of gentle emails of support to Governor Inslee requesting that SB 5448 be singed into law.  Below are two requests that say it well, followed by a brief update and links for further background on the Bill, including follow up on last week’s exciting margin […]

Reminder/Request ~ Email WA Health Care Committee (Supporting Chronic Lyme Bill SB 5448)

Reminder/Request ~ Email WA Health Care Committee (Supporting Chronic Lyme Bill SB 5448)

If you have not already done so please take a few minutes to write the Health Care Committee asking for their support on this very important Bill (Recognizing Chronic Lyme Disease).  I was raised in Washington, have a large number of friends and family in Washington, and travel to Washington for treatment of Chronic Lyme […]

WA Lyme Bill 5448 Unanimously Passes Senate Floor, Moves to House Hearing ~ Please Email Committee

WA Lyme Bill 5448 Unanimously Passes Senate Floor, Moves to House Hearing ~ Please Email Committee

Bill supporters in Washington and beyond have been ecstatic all week, since Washington Lyme Disease Advocate and Bill co-auther Dan Boeholt’s announcement that WA Bill 5448 (a Bill to Recognize Chronic Lyme Disease) has passed unanimously on the Senate floor and moves to House Hearing!  I had high hopes for this Bill being supported, but unanimous […]

Lyme in Oregon ~ Task Force Announces Draft Proposed Lyme Bill

Lyme in Oregon ~ Task Force Announces Draft Proposed Lyme Bill

A subcommittee of the Oregon Lyme Leaders (the Oregon Lyme Leaders Task Force) has been working toward draft legislation, drawing on months of collaboration and, for some or all members, years of preparation. The task force has used data from studies and surveys which were spearheaded by Oregon Lyme Disease Network over the last ten […]