Tag Archive | Lyme Disease Awareness
This effort was discussed in my recent post about my trip to DC last week, and is described in further detail in a post from May of last year. My letter was updated this year and some of the Montana patients active with Northern Rockies Lyme Disease Coalition efforts shared their photos to help further […]
Each May, The Mayday Project hosts a rally outside of the Infectious Disease Society of America’s Headquarters in Arlington, VA, to raise public awareness for Lyme Disease and for the damage being done by the outdated and dangerously flawed IDSA Lyme Disease Treatment Guidelines, and to fight for change. Patients travel from around the region […]
Misinformation about Lyme disease dangerously skews public perceptions of patients, in addition to perceptions of the disease, further alienating thousands of patients from families, friends and careers, as well as appropriate healthcare.
As you’ll read farther down, this post was written during week four of the Lyme Disease Challenge (which launched March 2015). There was so much more to cover than this that I set it aside until I had “time” to do it justice. Now, at the beginning of June 2015, even in it’s less-than-thorough-enough state, […]
Previously posted on Northern Rockies Lyme Disease Coalition. Posted with permission. This is not from the Northern Rockies, but clearly applicable to all of us. Thank you Melissa. Dear CDC and FDA, I don’t want to just go away. I want to live! I have a lot to offer this world. I am not just a […]
What do you wear to witness the signing of a state bill by the Governor? As I picked over my closet I thought about how I arrived at this day. I thought about my long fight over the last ten plus years. I thought about it all; the sleepless nights, the progressive symptoms that waxed […]
Washington’s SB 5448, Recognizing Chronic Lyme was signed Friday, April 24, by Governer Inslee. There will be more steps in the future, but the signing makes way for some of the stories from the inspiring patients that supported this bill. I love to share other people’s stories and other people’s work, and the patients advocating […]