Tag Archive | Lyme Disease Awareness

Letters To Strangers 2016 ~ Montana Letter

Letters To Strangers 2016 ~ Montana Letter

This effort was discussed in my recent post about my trip to DC last week, and is described in further detail in a post from May of last year.  My letter was updated this year and some of the Montana patients active with Northern Rockies Lyme Disease Coalition efforts shared their photos to help further […]

May 2016 Trip to Capitol Hill, IDSA Headquarters, and Lyme Policy and Science Forum

May 2016 Trip to Capitol Hill, IDSA Headquarters, and Lyme Policy and Science Forum

Each May, The Mayday Project hosts a rally outside of the Infectious Disease Society of America’s Headquarters in Arlington, VA, to raise public awareness for Lyme Disease and for the damage being done by the outdated and dangerously flawed IDSA Lyme Disease Treatment Guidelines, and to fight for change.  Patients travel from around the region […]

Yolanda Foster Bashing Doctor-Author Forgot To Research Lyme Disease (Part Two)

Yolanda Foster Bashing Doctor-Author Forgot To Research Lyme Disease (Part Two)

Misinformation about Lyme disease dangerously skews public perceptions of patients, in addition to perceptions of the disease, further alienating thousands of patients from families, friends and careers, as well as appropriate healthcare.

Lyme Disease Challenge Week One Highlights and Appreciation Post (Celebrities & Media)

Lyme Disease Challenge Week One Highlights and Appreciation Post (Celebrities & Media)

As you’ll read farther down, this post was written during week four of the Lyme Disease Challenge (which launched March 2015).  There was so much more to cover than this that I set it aside until I had “time” to do it justice.  Now, at the beginning of June 2015, even in it’s less-than-thorough-enough state, […]

DEAR CDC AND FDA ~ BY MELISSA VEHORN

DEAR CDC AND FDA ~ BY MELISSA VEHORN

Previously posted on Northern Rockies Lyme Disease Coalition. Posted with permission.  This is not from the Northern Rockies, but clearly applicable to all of us. Thank you Melissa. Dear CDC and FDA, I don’t want to just go away. I want to live! I have a lot to offer this world. I am not just a […]

Styling  a  Lyme  Bill ~ Washington Guest Post by Hannah Elise Miller Kato

Styling  a  Lyme  Bill ~ Washington Guest Post by Hannah Elise Miller Kato

What  do  you  wear  to  witness  the  signing  of  a  state  bill  by  the  Governor?  As  I  picked  over  my  closet  I  thought about  how  I  arrived  at  this  day.  I  thought  about  my  long  fight  over  the  last  ten  plus  years.  I  thought  about  it all;  the  sleepless  nights,  the  progressive  symptoms  that  waxed […]

Prologue ~ Guest Series from Washington’s Recognizing Chronic Lyme Bill Supporters

Prologue ~ Guest Series from Washington’s Recognizing Chronic Lyme Bill Supporters

Washington’s SB 5448, Recognizing Chronic Lyme was signed Friday, April 24, by Governer Inslee.  There will be more steps in the future, but the signing makes way for some of the stories from the inspiring patients that supported this bill. I love to share other people’s stories and other people’s work, and the patients advocating […]