Tag Archive | Lyme Disease Awareness

Questions, Logic, Ticks, and Lyme Funding Links from Northern Rockies Lyme Disease Coaltion

Questions, Logic, Ticks, and Lyme Funding Links from Northern Rockies Lyme Disease Coaltion

Following are three of the first articles published on the new Northern Rockies Lyme Disease Coalition website.  We are gearing up to launch May 1. The only anticipated on-line fanfare will be photographic (see requests below the article links) and real-life will include presence at the Mayday Project’s IDSA Rallies in Arlington, VA. A CALL FOR INCREASED […]

Lyme Disease Challenge Updates ~ My Kids’ On-going Challenges

Lyme Disease Challenge Updates ~ My Kids’ On-going Challenges

We challenged all of our families and friends and then some in smaller groups.  For all of the fun and surprising responses we’ve gotten in the celebrity world (which was not a part of all this we were expecting) the friends and family side has been a bit slow.  Very sweet responses, but only a […]

Letters To Strangers for Arlington MayDay Rally ~ Request Via Sheila Bush Can Also Benefit NorthernRockiesLyme.org

Letters To Strangers for Arlington MayDay Rally ~ Request Via Sheila Bush Can Also Benefit NorthernRockiesLyme.org

Sheila’s request is posted below and was also shared with The 1,000 Letters Lyme Campaign and in additional Facebook groups in recent days.  So take note that if you remember seeing something like this already, it was most likely this request. The intent is for the letters to be handed out at The MayDay Project’s […]

Recap and NEW TOOLS for IDSA Comment Period ~ Still not too late (EXTENDED THROUGH APRIL 24)

UPDATE: The comment period has reportedly been extended through April 24. As a very general recap, you can respond to a Lymedisease.org survey RIGHT NOW (though April 9) to contribute to their comment, and you can still (through tomorrow, April 9) submit your own comment.  I’ll list all the resources I’m aware of below.  They […]

Personal Overview of the IDSA ‘Public Comment’ Period ~ Part 1

We all know how important this is.  Not all patients know all the pieces or felt ready or physically or mentally able to respond directly.  I’ve had firm plans to submit my own comments, as well as question suggestions (based on IDSA President Calderwood’s statements following his meeting with The MayDay Project), and to respond […]

#ChrisBitesLyme ~ Enderswordman ~ Christopher #LymeDiseaseChallenge’d Tobuscus, Kid President, and EvanTube

#ChrisBitesLyme ~ Enderswordman ~ Christopher #LymeDiseaseChallenge’d Tobuscus, Kid President, and EvanTube

Christopher was almost ready for the Lyme Disease Challenge to start March 1 (www.lymediseasechallenge.org).  He made two videos in advance to give instructions, but then got sick.  Then I got sick.   His sister got her video done, so she could challenge some friends early on. Then the challenge started and a number of Lyme […]

Link to Press Release ~ Outcome of The Mayday Project and IDSA President Calderwood’s Meeting

Link to Press Release ~ Outcome of The Mayday Project and IDSA President Calderwood’s Meeting

Just Released Lyme Patient Advocates Meet with IDSA President, Discuss Concerns About Guidelines Review Process ARLINGTON, VA, Tuesday, March 24—Representatives from The Mayday Project Lyme patient advocacy group met with Infectious Diseases Society of America (IDSA) President, Dr. Stephen Calderwood, on Friday, March 20, to discuss concerns about the IDSA’s guidelines for diagnosis and treatment […]