Tag Archive | Lyme Awareness

Letters To Strangers 2016 ~ Montana Letter

Letters To Strangers 2016 ~ Montana Letter

This effort was discussed in my recent post about my trip to DC last week, and is described in further detail in a post from May of last year.  My letter was updated this year and some of the Montana patients active with Northern Rockies Lyme Disease Coalition efforts shared their photos to help further […]

Prologue ~ Guest Series from Washington’s Recognizing Chronic Lyme Bill Supporters

Prologue ~ Guest Series from Washington’s Recognizing Chronic Lyme Bill Supporters

Washington’s SB 5448, Recognizing Chronic Lyme was signed Friday, April 24, by Governer Inslee.  There will be more steps in the future, but the signing makes way for some of the stories from the inspiring patients that supported this bill. I love to share other people’s stories and other people’s work, and the patients advocating […]

Arguing Chronic Lyme ~ A (Very) Basic Overview & A Few Good Links

Arguing Chronic Lyme ~ A (Very) Basic Overview & A Few Good Links

This overview was initially part of another post from September (with patient accounts of long-term Lyme), but there were just too many ideas there to be valuable.  However, referencing that post is extremely valuable in digesting this overview, and in understanding why you should take the time to do so.  Dozens of patients were willing […]

WA Lyme Bill 5448 Unanimously Passes Senate Floor, Moves to House Hearing ~ Please Email Committee

WA Lyme Bill 5448 Unanimously Passes Senate Floor, Moves to House Hearing ~ Please Email Committee

Bill supporters in Washington and beyond have been ecstatic all week, since Washington Lyme Disease Advocate and Bill co-auther Dan Boeholt’s announcement that WA Bill 5448 (a Bill to Recognize Chronic Lyme Disease) has passed unanimously on the Senate floor and moves to House Hearing!  I had high hopes for this Bill being supported, but unanimous […]

Preliminary Notes ~ IDSA Comment Period and Mayday Project Webinar

Preliminary Notes ~ IDSA Comment Period and Mayday Project Webinar

This post has been tidied a bit (3/12/15) but is still intended to provide just preliminary information regarding the announcement of IDSA’s 30-day public comment period (ending April 9) and the Webinar held March 10th by The Mayday Project. Links to the primary documents plus webinar resources are listed below, and background info regarding past […]

Support French Lyme Patients ~ Send Support For Proposition N° 2291

Support French Lyme Patients ~ Send Support For Proposition N° 2291

I’ve posted twice lately about state-specific proposed legislation (Massachusetts and Washington) because even letters from out of state expressing information and support for better care have been catching representatives’ attention and helping the Lyme-patient-residents of those states. There is also, it turns out, a French Proposition (draft included below) that will soon go before the French […]

Yolanda Foster Bashing Doctor-Author Forgot To Research Lyme Disease (Part One)

Yolanda Foster Bashing Doctor-Author Forgot To Research Lyme Disease (Part One)

This is part one (focusing on the science) of a response to a recent article which questioned Real Housewives star Yolanda Foster’s Chronic Lyme Disease diagnosis and claimed that there is “no good evidence” that Chronic Lyme Disease exists. The author’s inflammatory title, “Real Housewife, Fake Disease” is fairly ironic, given that the doctor writes under a fake […]

My Son’s New Year’s Resolution for Lyme Awareness

My Son’s New Year’s Resolution for Lyme Awareness

My son’s teacher took the time to type and email my son’s resolution from a project in class, and it truly melts my heart.  It’s certainly not easy for either of my kids to have a mom with Lyme disease. Christopher’s Resolution ~ (9 years old, 3rd grade) My New Year’s resolution is to finally […]

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