Lyme Patient Advocates Meet with IDSA President, Discuss Concerns About Guidelines Review Process
ARLINGTON, VA, Tuesday, March 24—Representatives from The Mayday Project Lyme patient advocacy group met with Infectious Diseases Society of America (IDSA) President, Dr. Stephen Calderwood, on Friday, March 20, to discuss concerns about the IDSA’s guidelines for diagnosis and treatment of Lyme disease.
The 90-minute meeting took place via teleconference and was attended by Mayday Project co-founders Josh Cutler and Allison Caruana, along with lead researcher Saby Molina. According to Cutler, this was the first time the IDSA leadership has met with a Lyme patient advocacy group.
The release includes links to multiple resources related to the currently open comment period as well as links to recent facebook statements from the Mayday Project and to documents and articles providing background on activism efforts to date, past interactions with IDSA, and issues related to the guidelines and specific areas of concern.
One of the messages to supporters quoted in the release can be found on their website (HERE) and both can be found on the group’s facebook page.
[…] comments, as well as question suggestions (based on IDSA President Calderwood’s statements following his meeting with The MayDay Project), and to respond to Lymedisease.org’s survey (with results to be […]
[…] Link to Press Release ~ Outcome of The Mayday Project and IDSA President Calderwood’s Meeting (March 24) […]