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A Husband’s Advice ~ If A Loved One Has Lyme

A Husband’s Advice ~ If A Loved One Has Lyme

This is real, realer than you can imagine and leaving or not believing just proves the belief that it is not real. STAY. UNDERSTAND. FIGHT. LOVE. You cannot fix it, but you can make it better by simply STAYING and FIGHTING with your loved one.

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Three minutes, three calls, five people ~ Calling Congress Jan. 26/27

Three minutes, three calls, five people ~ Calling Congress Jan. 26/27

This call for action is based upon the failures of CDC in the handling of public policy on Lyme disease, including preferential treatment of the Infectious Diseases Society of America (IDSA), a private organization; failure to provide medical providers and patients with ALL the available information on diagnosis and treatment; extensive under-reporting of the disease; and conflicts of interest and violations of ethics rules.

Blog Post Link ~ Liberation Through Lyme ~ Why American Ninja Warrior?

Blog Post Link ~ Liberation Through Lyme ~ Why American Ninja Warrior?

Why American Ninja Warrior? I wanted to do this for so many reasons. My original reason was because everyone told me I couldn’t. I wanted to show them all that I may have stumbled temporarily but that I was not staying down. I also wanted to bring attention to the plight of the Chronic Lyme […]

En Route to Arlington ~ A Few Photos (& A Video) From Past Rallies

I’ve been to two Lyme rallies in the roughly two years (of my five years with Lyme disease) that I’ve been diagnosed.  Most of my in-person time with other Lyme patients has occurred within these trips.  The rest have been chance meetings on planes or while traveling, or the two times I’ve met other patients […]

IDSA Comment Period & Lymedisease.org Survey Extended to April 24

You can still comment through April 24 on IDSA’s Draft Review Plan for current Lyme disease guidelines, and you can still respond to Lymedisease.org’s related survey. LYMEPOLICYWONK: Deadline extended; you can still comment on IDSA  In March, the Infectious Diseases Society of America provided a 30-day window for the public to comment on its plan […]

IDSA Lyme Guidelines ~ Background Resources (with Notes for Comment Period)

Foreward ~ I’m so behind on my own comments, and the deadline for the IDSA Public Comment period is so fast approaching, that multiple posts with relevant or even related content or links are going to published in a rough state, including things like un-formatted and un-annotated lists of links, just to get the information out […]

Link to Press Release ~ Outcome of The Mayday Project and IDSA President Calderwood’s Meeting

Link to Press Release ~ Outcome of The Mayday Project and IDSA President Calderwood’s Meeting

Just Released Lyme Patient Advocates Meet with IDSA President, Discuss Concerns About Guidelines Review Process ARLINGTON, VA, Tuesday, March 24—Representatives from The Mayday Project Lyme patient advocacy group met with Infectious Diseases Society of America (IDSA) President, Dr. Stephen Calderwood, on Friday, March 20, to discuss concerns about the IDSA’s guidelines for diagnosis and treatment […]