This is real, realer than you can imagine and leaving or not believing just proves the belief that it is not real. STAY. UNDERSTAND. FIGHT. LOVE. You cannot fix it, but you can make it better by simply STAYING and FIGHTING with your loved one.
This call for action is based upon the failures of CDC in the handling of public policy on Lyme disease, including preferential treatment of the Infectious Diseases Society of America (IDSA), a private organization; failure to provide medical providers and patients with ALL the available information on diagnosis and treatment; extensive under-reporting of the disease; and conflicts of interest and violations of ethics rules.
Why American Ninja Warrior? I wanted to do this for so many reasons. My original reason was because everyone told me I couldn’t. I wanted to show them all that I may have stumbled temporarily but that I was not staying down. I also wanted to bring attention to the plight of the Chronic Lyme […]
I’ve been to two Lyme rallies in the roughly two years (of my five years with Lyme disease) that I’ve been diagnosed. Most of my in-person time with other Lyme patients has occurred within these trips. The rest have been chance meetings on planes or while traveling, or the two times I’ve met other patients […]
You can still comment through April 24 on IDSA’s Draft Review Plan for current Lyme disease guidelines, and you can still respond to Lymedisease.org’s related survey. LYMEPOLICYWONK: Deadline extended; you can still comment on IDSA In March, the Infectious Diseases Society of America provided a 30-day window for the public to comment on its plan […]
Foreward ~ I’m so behind on my own comments, and the deadline for the IDSA Public Comment period is so fast approaching, that multiple posts with relevant or even related content or links are going to published in a rough state, including things like un-formatted and un-annotated lists of links, just to get the information out […]
Just Released Lyme Patient Advocates Meet with IDSA President, Discuss Concerns About Guidelines Review Process ARLINGTON, VA, Tuesday, March 24—Representatives from The Mayday Project Lyme patient advocacy group met with Infectious Diseases Society of America (IDSA) President, Dr. Stephen Calderwood, on Friday, March 20, to discuss concerns about the IDSA’s guidelines for diagnosis and treatment […]
I will be joining Lyme disease patients from around the country tomorrow (Friday, Oct. 10) in Philadelphia for a candle light vigil outside the IDWeek Medical Conference and a peaceful protest outside the conference the following day (Saturday, Oct. 11, my husband’s 40th birthday). Per the MayDay Project’s event Facebook page: We are calling on […]
This post is a lengthy introduction to a study published in 1986 that speaks directly to the issue of the persistence of Lyme infection. This is one of many studies addressing this question (Lymedisease.org has a useful pdf list of similar evidence) in the past three or more decades. Yet many high profile doctors and […]
This is a preliminary post as this site develops. But this sign is worth a thousand words. It was present at the San Francisco IDSA Protest in October, 2013. You can read about that event on the ‘old blog’, where posts prior to Fall 2014 still live (Invisibly Lyme Montana on blogspot). More photos from […]
I may be the only true Lyme Loony in the state, as a Lyme disease infected biologist that monitors (and even occasionally captures) loons. Even then, this would depend on definition, as I am not the only biologist in Montana handling loons that has been infected. As a bit of background on the statement, a […]
Awareness and education specific to Montana is the primary purpose of this blog. But all Lyme patients benefit from education and outreach, and resources pertaining to states that don’t acknowledge Lyme tend to be pretty applicable in other states in the same boat. There’s no end to the stories of loss and pain brought about […]
This site is STILL UNDER CONSTRUCTION!! PLEASE take a look around, but also please CHECK BACK SOON! And please visit the current blog for recent and past posts and news.