Angela D

WA Lyme Bill 5448 Unanimously Passes Senate Floor, Moves to House Hearing ~ Please Email Committee

WA Lyme Bill 5448 Unanimously Passes Senate Floor, Moves to House Hearing ~ Please Email Committee

Bill supporters in Washington and beyond have been ecstatic all week, since Washington Lyme Disease Advocate and Bill co-auther Dan Boeholt’s announcement that WA Bill 5448 (a Bill to Recognize Chronic Lyme Disease) has passed unanimously on the Senate floor and moves to House Hearing!  I had high hopes for this Bill being supported, but unanimous […]

Preliminary Notes ~ IDSA Comment Period and Mayday Project Webinar

Preliminary Notes ~ IDSA Comment Period and Mayday Project Webinar

This post has been tidied a bit (3/12/15) but is still intended to provide just preliminary information regarding the announcement of IDSA’s 30-day public comment period (ending April 9) and the Webinar held March 10th by The Mayday Project. Links to the primary documents plus webinar resources are listed below, and background info regarding past […]

Lyme in Oregon ~ Task Force Announces Draft Proposed Lyme Bill

Lyme in Oregon ~ Task Force Announces Draft Proposed Lyme Bill

A subcommittee of the Oregon Lyme Leaders (the Oregon Lyme Leaders Task Force) has been working toward draft legislation, drawing on months of collaboration and, for some or all members, years of preparation. The task force has used data from studies and surveys which were spearheaded by Oregon Lyme Disease Network over the last ten […]

It’s Not Too Late: Contact 49 Senators NOW to Pass Chronic Lyme Bill SB 5448 in WA

It’s Not Too Late: Contact 49 Senators NOW to Pass Chronic Lyme Bill SB 5448 in WA

If you are active on Facebook in Lyme Disease patient groups, you may have seen (or may have missed) the following post from Dan Boeholt, co-author of Washington state’s proposed Chronic Lyme Bill, and founder of the related Facebook page, Ticked Off On Lyme WA: ~ Contact 49 Senators NOW to Pass our Chronic Lyme […]

Christopher’s Videos About the Lyme Disease Challenge (ChrisBitesLyme)

Christopher’s Videos About the Lyme Disease Challenge (ChrisBitesLyme)

I posted in early 2015 about about Christopher’s New Year’s Resolution, as emailed to me by his third grade teacher, to raise awareness for Lyme Disease through a gaming channel he plans to start on YouTube.  He also, very sweetly, planned to donate 99% of his profits to Lyme Disease awareness, using the other 1% […]

Lyme Disease Challenge Starts March 1 ~ How to Get Ready

Lyme Disease Challenge Starts March 1 ~ How to Get Ready

You can help “Take a Bite Out of Lyme” starting March 1, 2015, but you can do any or all of the following starting right now:

Unfashionably Ill ~ Your Best and Worst (Looking) Moments?  Pajamas, Strategies, and Illegal Yoga Pants…

Unfashionably Ill ~ Your Best and Worst (Looking) Moments? Pajamas, Strategies, and Illegal Yoga Pants…

Consciously or not, pajamas and lounge-wear gradually become important topics, and important assets, when illness has you stuck in your house or stuck in bed. Strategies gradually arise for rotating pajamas and for layering them with clothing, should the need arise (say, for grabbing groceries, rushing to the pharmacy, or picking up kids). As trivial […]

Please Email Senators by Feb 20 ~  WA Proposed Lyme Bill S.B. 5448 Updates ~ Action Needed!

Please Email Senators by Feb 20 ~ WA Proposed Lyme Bill S.B. 5448 Updates ~ Action Needed!

Please write Washington state Senators immediately to show your support! This post forwards the requests of Washington Lyme activists and organizers (with clear and specific steps to take), including the Lyme Disease Seattle WA Support Group, Ticked Off On Lyme WA, and Dan Boeholt (Bill coauthor). Pre-Notes For Residents/Non-Residents: Residents: The links below make it […]

Support French Lyme Patients ~ Send Support For Proposition N° 2291

Support French Lyme Patients ~ Send Support For Proposition N° 2291

I’ve posted twice lately about state-specific proposed legislation (Massachusetts and Washington) because even letters from out of state expressing information and support for better care have been catching representatives’ attention and helping the Lyme-patient-residents of those states. There is also, it turns out, a French Proposition (draft included below) that will soon go before the French […]

Yolanda Foster Bashing Doctor-Author Forgot To Research Lyme Disease (Part One)

Yolanda Foster Bashing Doctor-Author Forgot To Research Lyme Disease (Part One)

This is part one (focusing on the science) of a response to a recent article which questioned Real Housewives star Yolanda Foster’s Chronic Lyme Disease diagnosis and claimed that there is “no good evidence” that Chronic Lyme Disease exists. The author’s inflammatory title, “Real Housewife, Fake Disease” is fairly ironic, given that the doctor writes under a fake […]

Washington Proposed S.B. 5448 Would Allow Long Term Antibiotic Treatment For Lyme Disease

Washington Proposed S.B. 5448 Would Allow Long Term Antibiotic Treatment For Lyme Disease

Proposed legislation in Washington, S.B. 5448, was read during regular session on January 21, 2015, and referred to the Senate Health Care Committee, scheduled for hearing on February 2.  The bill would allow specified practioners to treat patients dianosed with Lyme Disease using long term antibiotics, “for a therapeutic purpose that eliminates infections or controls the […]

Email Massachusetts Senators (How and Why) Re H.D. 469 ~ Insurance Coverage for Lyme

Email Massachusetts Senators (How and Why) Re H.D. 469 ~ Insurance Coverage for Lyme

“There is currently a two-week window during which representatives can decide if they want to support the proposed bill known as: H.D. 469 An Act Relative to Lyme Disease Treatment Coverage, so we need to act quickly.”   The who, what and how of this issue was very well said and accounted for in a […]

Photos and Videos from Philadelphia Lyme Protest

In October, I posted links about the Philadelphia rally (before, during, and after), but I didn’t get around to posting many photos directly to this blog.  I did put links to some of the facebook photo albums (on the Invisibly Lyme Montana facebook page) in past posts, but here they are again, with a link to […]

Deer Ticks Confirmed in North Dakota Carry Lyme Disease and Important Implications for ‘Non-Lyme’ States

Deer Ticks Confirmed in North Dakota Carry Lyme Disease and Important Implications for ‘Non-Lyme’ States

Recent findings published in the Journal of Medical Entomology carry critically important implications for Lyme Disease detection in Montana and other states currently not considered Lyme endemic. Although North Dakota was considered to be outside the range of deer ticks (Ixodes scapularis), researchers sampled nine locations in North Dakota and found deer ticks present at six of them, including […]

Reminder & Last Chance: Lymedisease.org FDA Proposed Regulation Survey

Reminder & Last Chance: Lymedisease.org FDA Proposed Regulation Survey

Complete the survey immediately to have your answers included in the report, to be compiled this week. From Lymedisease.org’s facebook page:   More than 7500 people have taken our survey about Lyme testing. Their opinions will be included in a report to the FDA that we are compiling this week. Still time to make your […]

2015 IDSA Headquarters MayDay Protest: Reasons 1-5 to Read and SHARE

Visit the Event Page on Facebook, linked below, for event details, and read and share reasons 1-4 to participate in and promote this event. “We need to let the IDSA know WE WILL NOT STOP UNTIL THEY TAKE ACTION! THE IDSA NEEDS TO REVISE THE LYME GUIDELINES AND STOP REJECTING THE SCIENCE THAT PROVES WE […]

CDC Youtube Video NEEDS Comments

My comment is posted following the video.  Please visit, give it a thumbs down and tell them what you think. My comment: I was told my Bell’s palsy was definitely a coincidence, and not related to the tick bite I’d gotten at work (with my federal employer) a month earlier. The reason that doctors insisted […]

Mission Confusion ~ CDC Article Link

“The agency has a severe case of mission confusion”.  Cross-posted on Invisibly Lyme Montana facebook page: Disease uncontrolled: Swift decline of the CDC Demonstrating that Lyme diagnosis and care is not the only area where the CDC is off kilt…. I speculate there are serious legal issues (in addition to the profound ethical/moral issues) with the […]

Yep. Lyme will change you.

My Son’s New Year’s Resolution for Lyme Awareness

My Son’s New Year’s Resolution for Lyme Awareness

My son’s teacher took the time to type and email my son’s resolution from a project in class, and it truly melts my heart.  It’s certainly not easy for either of my kids to have a mom with Lyme disease. Christopher’s Resolution ~ (9 years old, 3rd grade) My New Year’s resolution is to finally […]