My comment is posted following the video. Please visit, give it a thumbs down and tell them what you think. My comment: I was told my Bell’s palsy was definitely a coincidence, and not related to the tick bite I’d gotten at work (with my federal employer) a month earlier. The reason that doctors insisted […]
The National Stamp Advisory Committee is willing to consider a Lyme Awareness Stamp if enough national interest is received. You can help with the (updated) letter templates and options provided here, or via groups noted in this post. In November 2014, the leader of a support group called Lyme Disease Eugene Oregon, Deb (‘Dive GirlDeb’ on […]
Hub Pages (a writing website) kindly added a Lyme Disease Topic in their Health section. One of the author’s whose work I’d been reading was in Philadelphia, but hadn’t put it together until after sharing some of her work on Facebook. I have photos of both of us holding up/carrying the same sign. We met […]
Until at least 1949, only soft bodied ticks were considered to carry the spirochetes later learned to be associated with Lyme disease. Later it was found that hard bodied ticks carried them also, but I’m at a loss as to how it was forgotten that they also were carried by soft bodied ticks. For the […]
This is another patient’s letter from the 1,000 Letters Lyme Campaign, posted with permission. See also Kristine’s Letter, Heather’s Letter, My Letter, the 1,000 Letters tab under ‘On-going Campaigns’ or find the group on facebook (The 1,000 Letters Lyme Campaign) to request membership (you can participate without being on facebook). More stories will be published over time, […]
“So whatever we’re in in the moment, sometimes it’s hard to imagine what’s coming….” ~Riley’s Mother, towards the end of the video
“Courage isn’t having the strength to go on…it’s going on when you don’t have the strength.” This is the face of courage and hope! (Posted with permission…..scroll down AFTER you watch the video for something you will be very happy to know)
This is another patient’s letter from the 1,000 Letters Lyme Campaign, posted with permission. See also Heather’s Letter, My Letter, or visit the group on facebook (The 1,000 Letters Lyme Campaign) to request membership (you can participate without being on facebook). More stories will be published over time, but these are just a few examples of […]
The following is one of hundreds of letters written so far as part of an awareness campaign, published with the author’s permission. She has since contributed significantly to spreading of other ongoing Lyme campaigns through social media networking and is soon to embark on the next phase of her lyme journey by beginning care with […]
Saturday’s protest included Lyme patients and loved ones from across the country, together to ask IDSA to revise guidelines for Lyme disease diagnosis, treatment, and care. Too many patients are misdiagnosed, their care delayed and lives destroyed. IDSA needs to incorporate current available science…
Post-protest link lists SO FAR for the Oct. 10 & 11, 2014, IDSA IDWeek Lyme Candlelight Vigil and Protest organized by The Mayday Project . Links for photos, albums, videos, news articles and coverage found so far, groups and pages present/involved, contact lists to save, and follow up links (who to thank, tweet, etc.). This […]
How to Help From Home ~ Philadelphia Candlelight Vigil and IDSA Protest *****October 11 post-event update—call fox and ABC—-see more at bottom of post****** Also see following blog post with Post-Protest links I’ll be adding links to this if I can from the train, otherwise google the references to find the lists!!!
I will be joining Lyme disease patients from around the country tomorrow (Friday, Oct. 10) in Philadelphia for a candle light vigil outside the IDWeek Medical Conference and a peaceful protest outside the conference the following day (Saturday, Oct. 11, my husband’s 40th birthday). Per the MayDay Project’s event Facebook page: We are calling on […]
I’m posting this for Courtney Prew, who is working on a class project raising awareness for Lyme disease for her Mom, Heather Prew, who is fighting chronic Lyme. They’ve already touched a bunch of Lymies since starting this (and made a bunch of us cry!!!) ~ please help Courtney reach many more! If you share […]
Before I contracted Lyme disease along the Middle Fork of the Flathead River in northwest Montana, I had everything I wanted. I had pretty much reached all of the major goals I had set for myself and then some. Not only had I gotten into (and completed) graduate school, but I had done so under […]
There were a couple of moments during Bell’s palsy that were laughable even during the moment. It’s not a funny condition or a fun experience, but it helped my family and I to be able to laugh about it. We have plenty of pirate references, still, that make us laugh, four years later. If I […]
Just two years ago, Nathan DeJong was confined to his house by Lyme disease. He’s since gone through three pairs of shoes in one year and completed an obstacle race, inspiring hundreds of patients. I am re-posting the contents a Facebook group post here, with permission, because even within the first hour or two posted […]
In honor of Public Lands Day, I’m posting this useful diagram from Lyme Disease Association (LDA). Stay safe outside!
This post is a lengthy introduction to a study published in 1986 that speaks directly to the issue of the persistence of Lyme infection. This is one of many studies addressing this question (Lymedisease.org has a useful pdf list of similar evidence) in the past three or more decades. Yet many high profile doctors and […]
Studies show that most people who contract Lyme disease don’t see the tell-tale rash, increasing the need for doctors and the public to understand that not single symptom or test result determines the presence of Lyme. Numbers are available, but the experiences of patients can help bring this point home.