Post-protest link lists SO FAR for the Oct. 10 & 11, 2014, IDSA IDWeek Lyme Candlelight Vigil and Protest organized by The Mayday Project . Links for photos, albums, videos, news articles and coverage found so far, groups and pages present/involved, contact lists to save, and follow up links (who to thank, tweet, etc.). This will be updated over the next few days, so all additional info and links appreciated.
Please Share and I’ll Add On
If you have a page or a group or an album to share, please let me know. Commenting here works great, but so does my Facebook page via message or comments.
If you have any of the above that you don’t think apply here, but you’d still be willing to share, please let me know, or just post with a note in any of the above locations anyway.
I’ll incorporate both into this post and/or resource pages.
Primary Event Links
The MayDay Project’s:
ADDED ~ Handout ~ Why We Protest Against the IDSA
ADDED ~ Additional Background ~ Evidence Based Health Care, Lymedisease.org
Articles and News Coverage
- newsworks (Friday Oct. 10) Protesters seeking recognition of chronic Lyme disease
- Wobular (Saturday Oct. 11) Link list
- Philly.com (Sunday Oct. 12) Lyme disease sufferers protest Infectious Diseases conference
- Philadelphia City and Press (Sunday Oct. 12) Protesters seeking recognition of chronic Lyme disease
- Philly.com (Sunday Oct. 12) Conflict over chronic Lyme disease reflected in Convention Center protest
- http://6abc.com/ (Channel six news coverage)
Photos, Albums, Videos
**As of Sunday. More will follow in a separate post (and here marked with “ADDED ~”). Also working on a photo montage—will post on Invisibly Lyme Montana facebook page when finished and also include in later post.
Publicly Shared Albums
- Mobile Uploads on Mayday Project Facebook page
- Philadelphia Album #1 Group Photo Invisibly Lyme Montana facebook page album, lots more to post—this is a few versions of the group photo so people can find themselves or pick a version
- On Lyme Disease Eugene Oregon’s Facebook page (298 photos) https://www.facebook.com/media/set/?set=oa.1485206568421580&type=1
- ADDED ~ Invisibly Lyme Montana Albums (so far)
Videos and Livestream footage (haven’t filtered through these yet)
- IDSA Lyme Protest October 11, 2014 Philadelphia, Youtube, Rick Urbanowski
- Josh Cutler getting thrown out of conference (haven’t watched this yet) http://new.livestream.com/accounts/8516279/events/3478622/videos/64511798
- http://6abc.com/ (channel six news coverage)
- ADDED ~ more by Rick Ubanowskihttps://www.youtube.com/watch?v=SE7QyPR5-Kk
- ADDED ~ Lyme Disease Protest – Philadelphia, PA – 10/11/14 by Nikimeow (4:31)
- ADDED ~ My youtube video: Asking IDSA for Change ~ Lyme Disease IDWeek Protest Philadelphia 2014
Other Photos So Far
#curethecdc #maydayproject #lymediseaseawareness #philadelphia
Lyme Groups, Pages, Blogs….
These mostly (but not entirely) groups I know of so far that were present or involved with this event. I’m sure I’ll have more to add.
To Thank for Coverage
- News 6 in Philedelphia
- More to come, watch for articles…..
To Keep Asking for Coverage (or thank, as applicable)
Press release: http://www.themaydayproject.org/#!press-release/c21uz (and/or or other news article links, your photos, etc.)
Your local stations? Some news groups film but don’t air it….if they have footage, it seems like it doesn’t hurt to ask.
Watch MayDayProject page for updates
Follow The Mayday Project on twitter and help retweet and watch for updates on which to thank and which to request coverage from.
To Save/Follow/Keep Your Eye On
This list overlaps somewhat with current or eventual resource pages and with the contact lists for pre and post-event.
- IDSA ~ Facebook, Twitter, Website
- CDC ~ Facebook, Twitter, Website
- Montana Network of Infectious Disease Doctors
- NIH, Dept. Health
Contacts to Save (Starter List)
These will be links from the pre-event contacts lists that seem useful for the future. They are the broader- than-Philadelphia ones that seem like we may want them to cover events or Lyme news in the future).
**If you already have such a list (such as ones targeted for mayday or the New York Vigil) please share!
Any and all links related to the above. And also the following….
If you have some time and some broader interest in helping compile resources
Again, if you have any of a blog, facebook page, group, or favorite links that you don’t think apply here, but you’d still be willing to share, please let me know, or just post in any of the above locations (Comments section here, Invisibly Lyme Montana facebook page) anyway.
I am trying to compile overall resources and links for the resource pages on this (new) blog (posts prior to fall 2014 reside on the former blogspot blog) in advance of the next waves of needed state/national political networking (see posts on H.R. 4701). So if you have a blog or a Facebook page or blog to share that isn’t applicable here, or suggestions or links for resource pages or best science to be sure to include.
Networking Side Notes (For Here and Elsewhere)
My goals with my blog and Facebook page are to collect state-specific resources and more general information and resources to spread awareness for Lyme and most specifically to work toward acknowledgement of Lyme in my state. Resources, information, and research to link or refer to help bolster my ability to network (without getting too far into the weeds in outreach and correspondence).
Some degree of engagement (here and on every page or blog you encounter that seeks to network or outreach) helps show prospective listeners/voters/activists/advocates/supporters the local and broader faces of Lyme and strengthens their incentives to take a closer look or provide media coverage.