Hope
A Husband’s Advice ~ If A Loved One Has Lyme
This is real, realer than you can imagine and leaving or not believing just proves the belief that it is not real. STAY. UNDERSTAND. FIGHT. LOVE. You cannot fix it, but you can make it better by simply STAYING and FIGHTING with your loved one.
Invisible Illness, Depression, and Speaking Out ~ Guest Post by Erika Morgan
It’s time to ‘stamp out stigma’ placed upon people with mental illnesses…Speak out for those who feel they cannot speak out for themselves. The following article, as with the two guest posts before it, began as a heart-felt facebook post that resonated with friends and patients quickly. As with those previous two, it warranted additional […]
ILADS peer reviewed Lyme Guidelines appropriately added to National Guideline Clearinghouse: preliminary context notes and relevant links
As most Lyme patients are aware, patients, physicians and medical practitioners seeking Lyme disease treatment information will only see one set of Lyme treatment guidelines referred to by the CDC. The problematic guidelines they will find, authored by the Infectious Disease Society of America (IDSA), create obstacles to diagnosis and care that leave thousands of […]
DEAR CDC AND FDA ~ BY MELISSA VEHORN
Previously posted on Northern Rockies Lyme Disease Coalition. Posted with permission. This is not from the Northern Rockies, but clearly applicable to all of us. Thank you Melissa. Dear CDC and FDA, I don’t want to just go away. I want to live! I have a lot to offer this world. I am not just a […]
Styling a Lyme Bill ~ Washington Guest Post by Hannah Elise Miller Kato
What do you wear to witness the signing of a state bill by the Governor? As I picked over my closet I thought about how I arrived at this day. I thought about my long fight over the last ten plus years. I thought about it all; the sleepless nights, the progressive symptoms that waxed […]
Lyme Disease Challenge Starts March 1 ~ How to Get Ready
You can help “Take a Bite Out of Lyme” starting March 1, 2015, but you can do any or all of the following starting right now:
My Son’s New Year’s Resolution for Lyme Awareness
My son’s teacher took the time to type and email my son’s resolution from a project in class, and it truly melts my heart. It’s certainly not easy for either of my kids to have a mom with Lyme disease. Christopher’s Resolution ~ (9 years old, 3rd grade) My New Year’s resolution is to finally […]
Applying the “Science” of Gratitude
Gratitude is harder with a chronic illness. Illness takes more away from life than it gives, which gradually and painfully lowers one’s expectations. Optimism and gratitude can’t reverse this completely, but can help if applied with determination, purpose, and consistency. Research supports this, at least, so I’m hopeful that I will find this to be […]
Lyme Disease U.S. Postage Stamp Could Become Reality ~ Letters Needed
The National Stamp Advisory Committee is willing to consider a Lyme Awareness Stamp if enough national interest is received. You can help with the (updated) letter templates and options provided here, or via groups noted in this post. In November 2014, the leader of a support group called Lyme Disease Eugene Oregon, Deb (‘Dive GirlDeb’ on […]
Philadelphia Lyme Protest After-links: Follow ups, Photos, Videos, News, Contacts
Post-protest link lists SO FAR for the Oct. 10 & 11, 2014, IDSA IDWeek Lyme Candlelight Vigil and Protest organized by The Mayday Project . Links for photos, albums, videos, news articles and coverage found so far, groups and pages present/involved, contact lists to save, and follow up links (who to thank, tweet, etc.). This […]
How to Help From Home ~ Philadelphia Candlelight Vigil and IDSA Protest
How to Help From Home ~ Philadelphia Candlelight Vigil and IDSA Protest *****October 11 post-event update—call fox and ABC—-see more at bottom of post****** Also see following blog post with Post-Protest links I’ll be adding links to this if I can from the train, otherwise google the references to find the lists!!!
Please Share Courtney’s Lyme Campaign ~ An 11-Year Old’s Class Project
I’m posting this for Courtney Prew, who is working on a class project raising awareness for Lyme disease for her Mom, Heather Prew, who is fighting chronic Lyme. They’ve already touched a bunch of Lymies since starting this (and made a bunch of us cry!!!) ~ please help Courtney reach many more! If you share […]
Gratitude Post ~ Everything I Wanted
Before I contracted Lyme disease along the Middle Fork of the Flathead River in northwest Montana, I had everything I wanted. I had pretty much reached all of the major goals I had set for myself and then some. Not only had I gotten into (and completed) graduate school, but I had done so under […]
Invisibly Lyme Montana 
Preliminary Notes ~ IDSA Comment Period and Mayday Project Webinar
This post has been tidied a bit (3/12/15) but is still intended to provide just preliminary information regarding the announcement of IDSA’s 30-day public comment period (ending April 9) and the Webinar held March 10th by The Mayday Project. Links to the primary documents plus webinar resources are listed below, and background info regarding past […]