Hope

A Husband’s Advice ~ If A Loved One Has Lyme

A Husband’s Advice ~ If A Loved One Has Lyme

This is real, realer than you can imagine and leaving or not believing just proves the belief that it is not real. STAY. UNDERSTAND. FIGHT. LOVE. You cannot fix it, but you can make it better by simply STAYING and FIGHTING with your loved one.

Invisible Illness, Depression, and Speaking Out ~ Guest Post by Erika Morgan

It’s time to ‘stamp out stigma’ placed upon people with mental illnesses…Speak out for those who feel they cannot speak out for themselves. The following article, as with the two guest posts before it, began as a heart-felt facebook post that resonated with friends and patients quickly.  As with those previous two, it warranted additional […]

ILADS peer reviewed Lyme Guidelines appropriately added to National Guideline Clearinghouse: preliminary context notes and relevant links

ILADS peer reviewed Lyme Guidelines appropriately added to National Guideline Clearinghouse: preliminary context notes and relevant links

As most Lyme patients are aware, patients, physicians and medical practitioners seeking Lyme disease treatment information will only see one set of Lyme treatment guidelines referred to by the CDC.  The problematic guidelines they will find, authored by the Infectious Disease Society of America (IDSA), create obstacles to diagnosis and care that leave thousands of […]

DEAR CDC AND FDA ~ BY MELISSA VEHORN

DEAR CDC AND FDA ~ BY MELISSA VEHORN

Previously posted on Northern Rockies Lyme Disease Coalition. Posted with permission.  This is not from the Northern Rockies, but clearly applicable to all of us. Thank you Melissa. Dear CDC and FDA, I don’t want to just go away. I want to live! I have a lot to offer this world. I am not just a […]

Styling  a  Lyme  Bill ~ Washington Guest Post by Hannah Elise Miller Kato

Styling  a  Lyme  Bill ~ Washington Guest Post by Hannah Elise Miller Kato

What  do  you  wear  to  witness  the  signing  of  a  state  bill  by  the  Governor?  As  I  picked  over  my  closet  I  thought about  how  I  arrived  at  this  day.  I  thought  about  my  long  fight  over  the  last  ten  plus  years.  I  thought  about  it all;  the  sleepless  nights,  the  progressive  symptoms  that  waxed […]

Preliminary Notes ~ IDSA Comment Period and Mayday Project Webinar

Preliminary Notes ~ IDSA Comment Period and Mayday Project Webinar

This post has been tidied a bit (3/12/15) but is still intended to provide just preliminary information regarding the announcement of IDSA’s 30-day public comment period (ending April 9) and the Webinar held March 10th by The Mayday Project. Links to the primary documents plus webinar resources are listed below, and background info regarding past […]

Lyme Disease Challenge Starts March 1 ~ How to Get Ready

Lyme Disease Challenge Starts March 1 ~ How to Get Ready

You can help “Take a Bite Out of Lyme” starting March 1, 2015, but you can do any or all of the following starting right now: