Lyme Disease Challenge

May 2016 Trip to Capitol Hill, IDSA Headquarters, and Lyme Policy and Science Forum

May 2016 Trip to Capitol Hill, IDSA Headquarters, and Lyme Policy and Science Forum

Each May, The Mayday Project hosts a rally outside of the Infectious Disease Society of America’s Headquarters in Arlington, VA, to raise public awareness for Lyme Disease and for the damage being done by the outdated and dangerously flawed IDSA Lyme Disease Treatment Guidelines, and to fight for change.  Patients travel from around the region […]

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Lyme Disease Challenge Week One Highlights and Appreciation Post (Celebrities & Media)

Lyme Disease Challenge Week One Highlights and Appreciation Post (Celebrities & Media)

As you’ll read farther down, this post was written during week four of the Lyme Disease Challenge (which launched March 2015).  There was so much more to cover than this that I set it aside until I had “time” to do it justice.  Now, at the beginning of June 2015, even in it’s less-than-thorough-enough state, […]

Thanking Doc Ivan ~ Honorary Lyme Warrior

Thanking Doc Ivan ~ Honorary Lyme Warrior

My kids and I saw the Lyme Disease Challenge video that Doc Ivan did for Sheila Bush (No Relation) when it first came out and got a huge kick out of it.  A big tough guy taking time for our cause made us smile.  It was one of the first celebrity videos in my album […]

Lyme Disease Challenge Updates ~ My Kids’ On-going Challenges

Lyme Disease Challenge Updates ~ My Kids’ On-going Challenges

We challenged all of our families and friends and then some in smaller groups.  For all of the fun and surprising responses we’ve gotten in the celebrity world (which was not a part of all this we were expecting) the friends and family side has been a bit slow.  Very sweet responses, but only a […]

Tweeting the Surgeon General for #NPHW ~ Kudos to Patients for Great Questions

It took more energy than I had to submit what I could for IDSA’s comment period on it’s final day.  It was not an easy process, and I am still exhausted and recovering. So many things happened yesterday that the events will likely spill into multiple posts and will be things we remember for a […]

#ChrisBitesLyme ~ Enderswordman ~ Christopher #LymeDiseaseChallenge’d Tobuscus, Kid President, and EvanTube

#ChrisBitesLyme ~ Enderswordman ~ Christopher #LymeDiseaseChallenge’d Tobuscus, Kid President, and EvanTube

Christopher was almost ready for the Lyme Disease Challenge to start March 1 (www.lymediseasechallenge.org).  He made two videos in advance to give instructions, but then got sick.  Then I got sick.   His sister got her video done, so she could challenge some friends early on. Then the challenge started and a number of Lyme […]