CDC

Asking IDSA for Change ~ Video is Up: Lyme Disease IDWeek Protest Philadelphia 2014

Saturday’s protest included Lyme patients and loved ones from across the country, together to ask IDSA to revise guidelines for Lyme disease diagnosis, treatment, and care. Too many patients are misdiagnosed, their care delayed and lives destroyed. IDSA needs to incorporate current available science…

Philadelphia Lyme Protest After-links: Follow ups, Photos, Videos, News, Contacts

Post-protest link lists SO FAR for the Oct. 10 & 11, 2014, IDSA IDWeek Lyme Candlelight Vigil and Protest organized by The Mayday Project .  Links for photos, albums, videos, news articles and coverage found so far, groups and pages present/involved, contact lists to save, and follow up links (who to thank, tweet, etc.).  This […]

How to Help From Home ~ Philadelphia Candlelight Vigil and IDSA Protest

How to Help From Home ~ Philadelphia Candlelight Vigil and IDSA Protest

How to Help From Home ~ Philadelphia Candlelight Vigil and IDSA Protest *****October 11 post-event update—call fox and ABC—-see more at bottom of post****** Also see following blog post with Post-Protest links I’ll be adding links to this if I can from the train, otherwise google the references to find the lists!!!

En Route to Philadelphia ~ Lyme Activists Target IDSA Conference

En Route to Philadelphia ~ Lyme Activists Target IDSA Conference

I will be joining Lyme disease patients from around the country tomorrow (Friday, Oct. 10) in Philadelphia for a candle light vigil outside the IDWeek Medical Conference and a peaceful protest outside the conference the following day (Saturday, Oct. 11, my husband’s 40th birthday).  Per the MayDay Project’s event Facebook page: We are calling on […]

Why is Two-Tiered Lyme Disease Testing Still in Use? Check Out This POLICYWONK Article

 Lymdisease.org diagram, full size below Please take a moment to read the article I’m leading into here, and if your time is perhaps too short to read until we get there, please scroll directly down to the article link.  At the very least, you need to save this one for later.  (And/or share it with […]

Use of Best Available Current Science Would Lead to Appropriate Diagnosis and Care

There will be numerous posts on this topic, as it is the primary obstacle to proper care for Lyme patients.  Inadequate guidelines authored by IDSA and published/supported by CDC are causing misdiagnosis, delayed diagnosis, delayed care, inadequate care, and permanent disability or death for thousands and thousands of the millions of people who have contracted […]