Awareness and Advocacy
Please Email Senators by Feb 20 ~ WA Proposed Lyme Bill S.B. 5448 Updates ~ Action Needed!
Please write Washington state Senators immediately to show your support! This post forwards the requests of Washington Lyme activists and organizers (with clear and specific steps to take), including the Lyme Disease Seattle WA Support Group, Ticked Off On Lyme WA, and Dan Boeholt (Bill coauthor). Pre-Notes For Residents/Non-Residents: Residents: The links below make it […]
Support French Lyme Patients ~ Send Support For Proposition N° 2291
I’ve posted twice lately about state-specific proposed legislation (Massachusetts and Washington) because even letters from out of state expressing information and support for better care have been catching representatives’ attention and helping the Lyme-patient-residents of those states. There is also, it turns out, a French Proposition (draft included below) that will soon go before the French […]
Yolanda Foster Bashing Doctor-Author Forgot To Research Lyme Disease (Part One)
This is part one (focusing on the science) of a response to a recent article which questioned Real Housewives star Yolanda Foster’s Chronic Lyme Disease diagnosis and claimed that there is “no good evidence” that Chronic Lyme Disease exists. The author’s inflammatory title, “Real Housewife, Fake Disease” is fairly ironic, given that the doctor writes under a fake […]
Washington Proposed S.B. 5448 Would Allow Long Term Antibiotic Treatment For Lyme Disease
Proposed legislation in Washington, S.B. 5448, was read during regular session on January 21, 2015, and referred to the Senate Health Care Committee, scheduled for hearing on February 2. The bill would allow specified practioners to treat patients dianosed with Lyme Disease using long term antibiotics, “for a therapeutic purpose that eliminates infections or controls the […]
Email Massachusetts Senators (How and Why) Re H.D. 469 ~ Insurance Coverage for Lyme
“There is currently a two-week window during which representatives can decide if they want to support the proposed bill known as: H.D. 469 An Act Relative to Lyme Disease Treatment Coverage, so we need to act quickly.” The who, what and how of this issue was very well said and accounted for in a […]
Photos and Videos from Philadelphia Lyme Protest
In October, I posted links about the Philadelphia rally (before, during, and after), but I didn’t get around to posting many photos directly to this blog. I did put links to some of the facebook photo albums (on the Invisibly Lyme Montana facebook page) in past posts, but here they are again, with a link to […]
Deer Ticks Confirmed in North Dakota Carry Lyme Disease and Important Implications for ‘Non-Lyme’ States
Recent findings published in the Journal of Medical Entomology carry critically important implications for Lyme Disease detection in Montana and other states currently not considered Lyme endemic. Although North Dakota was considered to be outside the range of deer ticks (Ixodes scapularis), researchers sampled nine locations in North Dakota and found deer ticks present at six of them, including […]
Reminder & Last Chance: Lymedisease.org FDA Proposed Regulation Survey
Complete the survey immediately to have your answers included in the report, to be compiled this week. From Lymedisease.org’s facebook page: More than 7500 people have taken our survey about Lyme testing. Their opinions will be included in a report to the FDA that we are compiling this week. Still time to make your […]
2015 IDSA Headquarters MayDay Protest: Reasons 1-5 to Read and SHARE
Visit the Event Page on Facebook, linked below, for event details, and read and share reasons 1-4 to participate in and promote this event. “We need to let the IDSA know WE WILL NOT STOP UNTIL THEY TAKE ACTION! THE IDSA NEEDS TO REVISE THE LYME GUIDELINES AND STOP REJECTING THE SCIENCE THAT PROVES WE […]
CDC Youtube Video NEEDS Comments
My comment is posted following the video. Please visit, give it a thumbs down and tell them what you think. My comment: I was told my Bell’s palsy was definitely a coincidence, and not related to the tick bite I’d gotten at work (with my federal employer) a month earlier. The reason that doctors insisted […]
Mission Confusion ~ CDC Article Link
“The agency has a severe case of mission confusion”. Cross-posted on Invisibly Lyme Montana facebook page: Disease uncontrolled: Swift decline of the CDC Demonstrating that Lyme diagnosis and care is not the only area where the CDC is off kilt…. I speculate there are serious legal issues (in addition to the profound ethical/moral issues) with the […]
My Son’s New Year’s Resolution for Lyme Awareness
My son’s teacher took the time to type and email my son’s resolution from a project in class, and it truly melts my heart. It’s certainly not easy for either of my kids to have a mom with Lyme disease. Christopher’s Resolution ~ (9 years old, 3rd grade) My New Year’s resolution is to finally […]
Lyme Ribbons 2015
Check out Lyme Ribbons 2015, newly launched awareness effort… https://www.facebook.com/events/1516674288613073/
Go Fund Me Link ~ Please Help (And Pray For) Heather Haynes
Friend/Patient/Advocate In Need of Assistance ~ Heather Haynes Go Fund Me Link ~
Lyme Disease U.S. Postage Stamp Could Become Reality ~ Letters Needed
The National Stamp Advisory Committee is willing to consider a Lyme Awareness Stamp if enough national interest is received. You can help with the (updated) letter templates and options provided here, or via groups noted in this post. In November 2014, the leader of a support group called Lyme Disease Eugene Oregon, Deb (‘Dive GirlDeb’ on […]
Lyme Disease Articles on Hub Pages ~ First Two
Hub Pages (a writing website) kindly added a Lyme Disease Topic in their Health section. One of the author’s whose work I’d been reading was in Philadelphia, but hadn’t put it together until after sharing some of her work on Facebook. I have photos of both of us holding up/carrying the same sign. We met […]
“Recent” Tick Science From 1909, Revised in 1949 (Then Apparently Forgotten)
Until at least 1949, only soft bodied ticks were considered to carry the spirochetes later learned to be associated with Lyme disease. Later it was found that hard bodied ticks carried them also, but I’m at a loss as to how it was forgotten that they also were carried by soft bodied ticks. For the […]
Invisibly Lyme Montana 