Action Needed

Support French Lyme Patients ~ Send Support For Proposition N° 2291

Support French Lyme Patients ~ Send Support For Proposition N° 2291

I’ve posted twice lately about state-specific proposed legislation (Massachusetts and Washington) because even letters from out of state expressing information and support for better care have been catching representatives’ attention and helping the Lyme-patient-residents of those states. There is also, it turns out, a French Proposition (draft included below) that will soon go before the French […]

Washington Proposed S.B. 5448 Would Allow Long Term Antibiotic Treatment For Lyme Disease

Washington Proposed S.B. 5448 Would Allow Long Term Antibiotic Treatment For Lyme Disease

Proposed legislation in Washington, S.B. 5448, was read during regular session on January 21, 2015, and referred to the Senate Health Care Committee, scheduled for hearing on February 2.  The bill would allow specified practioners to treat patients dianosed with Lyme Disease using long term antibiotics, “for a therapeutic purpose that eliminates infections or controls the […]

Email Massachusetts Senators (How and Why) Re H.D. 469 ~ Insurance Coverage for Lyme

Email Massachusetts Senators (How and Why) Re H.D. 469 ~ Insurance Coverage for Lyme

“There is currently a two-week window during which representatives can decide if they want to support the proposed bill known as: H.D. 469 An Act Relative to Lyme Disease Treatment Coverage, so we need to act quickly.”   The who, what and how of this issue was very well said and accounted for in a […]

Reminder & Last Chance: Lymedisease.org FDA Proposed Regulation Survey

Reminder & Last Chance: Lymedisease.org FDA Proposed Regulation Survey

Complete the survey immediately to have your answers included in the report, to be compiled this week. From Lymedisease.org’s facebook page:   More than 7500 people have taken our survey about Lyme testing. Their opinions will be included in a report to the FDA that we are compiling this week. Still time to make your […]

2015 IDSA Headquarters MayDay Protest: Reasons 1-5 to Read and SHARE

Visit the Event Page on Facebook, linked below, for event details, and read and share reasons 1-4 to participate in and promote this event. “We need to let the IDSA know WE WILL NOT STOP UNTIL THEY TAKE ACTION! THE IDSA NEEDS TO REVISE THE LYME GUIDELINES AND STOP REJECTING THE SCIENCE THAT PROVES WE […]

CDC Youtube Video NEEDS Comments

My comment is posted following the video.  Please visit, give it a thumbs down and tell them what you think. My comment: I was told my Bell’s palsy was definitely a coincidence, and not related to the tick bite I’d gotten at work (with my federal employer) a month earlier. The reason that doctors insisted […]

Lyme Ribbons 2015

Check out Lyme Ribbons 2015, newly launched awareness effort… https://www.facebook.com/events/1516674288613073/

Go Fund Me Link ~ Please Help (And Pray For) Heather Haynes

Go Fund Me Link ~ Please Help (And Pray For) Heather Haynes

Friend/Patient/Advocate In Need of Assistance ~ Heather Haynes Go Fund Me Link ~

Lyme Disease U.S. Postage Stamp Could Become Reality ~ Letters Needed

Lyme Disease U.S. Postage Stamp Could Become Reality ~ Letters Needed

The National Stamp Advisory Committee is willing to consider a Lyme Awareness Stamp if enough national interest is received.  You can help with the (updated) letter templates and options provided here, or via groups noted in this post. In November 2014, the leader of a support group called Lyme Disease Eugene Oregon, Deb (‘Dive GirlDeb’ on […]

Lymedisease.org Needs Survey Answers ~ Potential FDA Lyme Testing Regulation Changes

Lymedisease.org Needs Survey Answers ~ Potential FDA Lyme Testing Regulation Changes

This did not take long to complete and is an opportunity to have your information, concerns, and situation represented. The more people that answer, the larger the sample size and the more meaningful and representative this information will be. As an example, their past survey regarding Lyme patient quality of life had over 5,000 respondents, […]