Patient Advocacy

Site Construction In Progress ~ Please Stay Tuned!

I have been blogging about Lyme on a blogspot blog since my diagnosis in early 2013.  Funny, it feels longer ago than that. I’ve realized lately that it would be valuable to have a location that could serve as more of a repository of Montana specific information for networking with patients and for sharing information […]

Read the Sign!  ‘Nuff Said? Please Help

Read the Sign! ‘Nuff Said? Please Help

This is a preliminary post as this site develops.  But this sign is worth a thousand words.  It was present at the San Francisco IDSA Protest in October, 2013.  You can read about that event on the ‘old blog’, where posts prior to Fall 2014 still live (Invisibly Lyme Montana on blogspot).  More photos from […]

Retiring NIH Official Said He Would Not Miss “Lyme Loonies”

I may be the only true Lyme Loony in the state, as a Lyme disease infected biologist that monitors (and even occasionally captures) loons.  Even then, this would depend on definition, as I am not the only biologist in Montana handling loons that has been infected. As a bit of background on the statement, a […]

Lime Lives in Montana ~ Help Doctors Help Patients!

Awareness and education specific to Montana is the primary purpose of this blog.  But all Lyme patients benefit from education and outreach, and resources pertaining to states that don’t acknowledge Lyme tend to be pretty applicable in other states in the same boat. There’s no end to the stories of loss and pain brought about […]

Hopefully Travelling to New York Lyme Vigil Sept. 17

Pending a reasonably priced hotel and reasonably energy levels this week, I may be headed to participate in my second Lyme disease Awareness/Activism/Advocacy event later this month.

Why is Two-Tiered Lyme Disease Testing Still in Use? Check Out This POLICYWONK Article

 Lymdisease.org diagram, full size below Please take a moment to read the article I’m leading into here, and if your time is perhaps too short to read until we get there, please scroll directly down to the article link.  At the very least, you need to save this one for later.  (And/or share it with […]

Use of Best Available Current Science Would Lead to Appropriate Diagnosis and Care

There will be numerous posts on this topic, as it is the primary obstacle to proper care for Lyme patients.  Inadequate guidelines authored by IDSA and published/supported by CDC are causing misdiagnosis, delayed diagnosis, delayed care, inadequate care, and permanent disability or death for thousands and thousands of the millions of people who have contracted […]

Recent Article, 1,000 Letters Campaign, Lyme Bill, and Social Media Updates

There’s too much happening right now to write about very much of it.  I drove cross country last month to bring home our new car (a hail damaged car we drove back from Virginia, more here).  I’m fairly tired, having returned home just before the start of school.  It was a long trip due to […]