Angela D
The “Funny Parts” of My Bell’s Palsy Story
There were a couple of moments during Bell’s palsy that were laughable even during the moment. It’s not a funny condition or a fun experience, but it helped my family and I to be able to laugh about it. We have plenty of pirate references, still, that make us laugh, four years later. If I […]
Public Lands Day ~ Tick Removal Poster
In honor of Public Lands Day, I’m posting this useful diagram from Lyme Disease Association (LDA). Stay safe outside!
Long-Term Lyme: Were You Diagnosed With Lyme Disease First, or Something Else?
For millions of patients, like me and the dozens of other patients that shared varying degrees of their situations and stories here, still fighting Lyme Disease years after our initial infection, it is emotionally difficult to read or hear that our disease ‘does not exist’. We need a larger percentage of doctors and the general public […]
1986 Lyme Persistence Study is Just One Example of Relevant Available Science
This post is a lengthy introduction to a study published in 1986 that speaks directly to the issue of the persistence of Lyme infection. This is one of many studies addressing this question (Lymedisease.org has a useful pdf list of similar evidence) in the past three or more decades. Yet many high profile doctors and […]
Did You See a Rash? Most Lyme Patients Don’t
Studies show that most people who contract Lyme disease don’t see the tell-tale rash, increasing the need for doctors and the public to understand that not single symptom or test result determines the presence of Lyme. Numbers are available, but the experiences of patients can help bring this point home.
Proposed Lyme Legislation H.R. 4701 (Gibson Bill) Links and Updates: Post-House, Pre-Senate
Last week H.R. 4701 (The Tick-borne Disease Research Transparency and Accountability Act of 2014) passed the house. The bill is also known as the Gibson Bill, after the bill’s author, New York Senator Chris Gibson. Per Lyme disease.org: H.R. 4701 forms an interagency working group consisting of federal agencies and non-federal partners, including experienced Lyme physicians […]
Montanans Continue to Be Infected and Misdiagnosed
My hope is that Montanans with Lyme disease will soon be able to receive care in Montana, no matter where they contracted it. There will continue to be repetition of this point in posts here, as well as the issues surrounding that point. I also hope, however, that contractions in Montana will VERY soon be […]
Site Construction In Progress ~ Please Stay Tuned!
I have been blogging about Lyme on a blogspot blog since my diagnosis in early 2013. Funny, it feels longer ago than that. I’ve realized lately that it would be valuable to have a location that could serve as more of a repository of Montana specific information for networking with patients and for sharing information […]
Read the Sign! ‘Nuff Said? Please Help
This is a preliminary post as this site develops. But this sign is worth a thousand words. It was present at the San Francisco IDSA Protest in October, 2013. You can read about that event on the ‘old blog’, where posts prior to Fall 2014 still live (Invisibly Lyme Montana on blogspot). More photos from […]
Retiring NIH Official Said He Would Not Miss “Lyme Loonies”
I may be the only true Lyme Loony in the state, as a Lyme disease infected biologist that monitors (and even occasionally captures) loons. Even then, this would depend on definition, as I am not the only biologist in Montana handling loons that has been infected. As a bit of background on the statement, a […]
Lime Lives in Montana ~ Help Doctors Help Patients!
Awareness and education specific to Montana is the primary purpose of this blog. But all Lyme patients benefit from education and outreach, and resources pertaining to states that don’t acknowledge Lyme tend to be pretty applicable in other states in the same boat. There’s no end to the stories of loss and pain brought about […]
Hopefully Travelling to New York Lyme Vigil Sept. 17
Pending a reasonably priced hotel and reasonably energy levels this week, I may be headed to participate in my second Lyme disease Awareness/Activism/Advocacy event later this month.
SITE IN PROGRESS!!!
This site is STILL UNDER CONSTRUCTION!! PLEASE take a look around, but also please CHECK BACK SOON! And please visit the current blog for recent and past posts and news.
Why is Two-Tiered Lyme Disease Testing Still in Use? Check Out This POLICYWONK Article
Lymdisease.org diagram, full size below Please take a moment to read the article I’m leading into here, and if your time is perhaps too short to read until we get there, please scroll directly down to the article link. At the very least, you need to save this one for later. (And/or share it with […]
Use of Best Available Current Science Would Lead to Appropriate Diagnosis and Care
There will be numerous posts on this topic, as it is the primary obstacle to proper care for Lyme patients. Inadequate guidelines authored by IDSA and published/supported by CDC are causing misdiagnosis, delayed diagnosis, delayed care, inadequate care, and permanent disability or death for thousands and thousands of the millions of people who have contracted […]
Recent Article, 1,000 Letters Campaign, Lyme Bill, and Social Media Updates
There’s too much happening right now to write about very much of it. I drove cross country last month to bring home our new car (a hail damaged car we drove back from Virginia, more here). I’m fairly tired, having returned home just before the start of school. It was a long trip due to […]
Invisibly Lyme Montana 