My new site and organization, at NorthernRockiesLyme.org, is up and running, although still in progress.
We will continue to be seeking map locations and several types of photos, used initially to celebrate and prepare for our May 1 launch and participation in The Mayday Project’s IDSA Rallies in Arlington April 30 and May 1.
Patient voices are extremely isolated from one another in most parts of this region (roughly defined so far as MT, WY, ID, ND, SD, Alberta, BC, Saskatchewan). Patients’ voices are more likely to effect change through organized efforts and collaboration, so the aim here is to help close some of the geographic and figurative networking gaps (in ways that benefit as many groups and areas as possible). In our least organized areas so far, we can learn a lot from other states and provinces who are willing to help us learn from their efforts.
Multiple organizers and groups in other regions or at larger scales are willing to help and have been offering us invaluable guidance. This is all starting a bit fast, but there’s a lot happening nationally that we NEED to be a part of, and that we need to have visibility in time to benefit from locally.
Visit the site and background pages to learn more, but in general:
We will be seeking opportunities for collaborative planning, networking, and regional representation and visibility, beginning with upcoming national events. Prior to our launch we will be constructing the site and posting requests for preliminary information and help. We want to help existing groups show our collective presence and have begun to work together and partner for other campaigns.
PLEASE SHARE YOUR LOCATION IF YOU ARE LIVING WITH OR CONTRACTED LYME IN THE NORTHERN ROCKY MOUNTAINS!
So far, this includes Montana, Wyoming, Idaho, North Dakota, South Dakota, B.C., Alberta, and Saskatchewan.
This is not a formal survey and is intended to help build awareness visually and as a starting point for painting the picture…
Photo Sweep (Please Share Photos–Anyone, Anywhere):
Bite Outside Photos: Take a selfie or photo outside with or biting a lime. If you already have an outside Lyme disease challenge photo, send that. Tag with #biteoutside
Lyme Outside Photos: Past or present photos of you enjoying the outdoors. Please note where you are or where you are from in the picture. Tag with #lymeoutside
Recycled Lyme Photos: Send photos you’ve created through other campaigns or other photos, images, or art you’ve created that are meaningful to you. Tag with #RecycledLymePhotos
*Send your pictures to: firstname.lastname@example.org or post on our FB page: http://goo.gl/czH1cQ
Other Ways To Get Involved
We can use help asking for photos, reaching more regional patients, with outreach in general, and with various areas of our development. For those interested in volunteering now or in the future, interest forms will be be posted, hopefully in the near future, and you can contact us via email@example.com.
Our primary regional contributors so far have been Carole Will Bennett (Montana) and Jill McAllister (Canada, Faces of Lyme Disease), and Bradi Lee Ethier (Artist, Canada). You can see some of what they’ve done so far in posts on the new site, posts on the Facebook page (and event page), and in outreach photos in those locations.
Many folks have been assisting behind the scenes, and I am very grateful (though I haven’t asked to publicly thank them yet, so they will remain nameless, but appreciated, for the present time).
Some of Our Affiliated Organizations, Groups, and Pages (So Far, please check back soon)…
[…] this was also due to Northern Rockies Lyme Disease Coalition getting it’s start (read more here and visit NorthernRockiesLyme.org to learn more). A number of patients in Montana, Idaho, and […]
CAN SOMEONE PLEASE HELP US. MY HUSBAND HAS HAD LYME DISEASE FOR YEARS,WE NOW LIVE IN LIBBY MT. WE ARE HAVING A HEALTH FAIR ON APRIL 9TH. IT WOULD BE NICE TO HAND OUT INFORMATION AND PAMPHLETS. I DONT HAVE A LOT OF INFO TO GIVE OUT. IT WOULD BE EVEN GREATER IF I COULD GET SOMEONE TO ANSWER QUESTIONS. I NEED INFO FOR THE PUBLIC AND FOR THE DOCTORS. PLEASE PLEASE HELP !!!!!!! DESPERATE PAM MY # 406-291-5440
I’m terribly sorry that I missed this, I was not doing so well health wise and to spend less time on line. I will try to make sure my email for this blog is up and running and add that address here. Too little too late, and I’m very sorry. But I’d like to hear how things went and see if you still could use any info I can give you. In general information for our state is very limited, and the state resources on line mostly state very little that is helpful.
If you are on facebook I can connect you with others in the state fairly quickly.