Tag Archive | Awareness and Advocacy

Mary Beth Pfeiffer Article in Poughkeepsie Journal: Review of Lyme disease treatment leaves out patients

Mary Beth Pfeiffer Article in Poughkeepsie Journal: Review of Lyme disease treatment leaves out patients

If you only share one article this month (or even this year) about Lyme disease, consider this one. I’ve describe multiple articles lately as ‘must read’ and I’ve got a great many more to catch up on.  This one, however, is a must, must, must share and a must link-to in addition to being a must […]

Thanking Doc Ivan ~ Honorary Lyme Warrior

Thanking Doc Ivan ~ Honorary Lyme Warrior

My kids and I saw the Lyme Disease Challenge video that Doc Ivan did for Sheila Bush (No Relation) when it first came out and got a huge kick out of it.  A big tough guy taking time for our cause made us smile.  It was one of the first celebrity videos in my album […]

Lyme Links ~ Essential Reading, Late May 2015

Lyme Links ~ Essential Reading, Late May 2015

There were so many not-to-be-missed articles this month that they ALL became easy to miss and easy to lose track of.  Which I have done, prior to finding the time to read or share most of them. This is due in large part to May being Lyme Disease Awareness month, and to the ongoing traction […]

PostStar Link ~ Must Read Commentary by Holly Ahern

PostStar Link ~ Must Read Commentary by Holly Ahern

Commentary: Diagnosis, treatment of Lyme Disease controversial May 24, 2015 As an advocacy organization, Lyme Action Network (of which I am co-founder) does not “support” medical guidelines. LAN does, however, support the rights of patients to be advised that there is more than one evidence-based, medically recognized standard of care for Lyme disease, and that […]

Styling  a  Lyme  Bill ~ Washington Guest Post by Hannah Elise Miller Kato

Styling  a  Lyme  Bill ~ Washington Guest Post by Hannah Elise Miller Kato

What  do  you  wear  to  witness  the  signing  of  a  state  bill  by  the  Governor?  As  I  picked  over  my  closet  I  thought about  how  I  arrived  at  this  day.  I  thought  about  my  long  fight  over  the  last  ten  plus  years.  I  thought  about  it all;  the  sleepless  nights,  the  progressive  symptoms  that  waxed […]

Prologue ~ Guest Series from Washington’s Recognizing Chronic Lyme Bill Supporters

Prologue ~ Guest Series from Washington’s Recognizing Chronic Lyme Bill Supporters

Washington’s SB 5448, Recognizing Chronic Lyme was signed Friday, April 24, by Governer Inslee.  There will be more steps in the future, but the signing makes way for some of the stories from the inspiring patients that supported this bill. I love to share other people’s stories and other people’s work, and the patients advocating […]

Northern Rockies Lyme Disease Coalition ~ Requesting Photos and Map Locations

Northern Rockies Lyme Disease Coalition ~ Requesting Photos and Map Locations

My new site and organization, at NorthernRockiesLyme.org, is up and running, although still in progress. We will continue to be seeking map locations and several types of photos, used initially to celebrate and prepare for our May 1 launch and participation in The Mayday Project’s IDSA Rallies in Arlington April 30 and May 1. Patient voices are […]