Lyme Disease in Montana
This effort was discussed in my recent post about my trip to DC last week, and is described in further detail in a post from May of last year. My letter was updated this year and some of the Montana patients active with Northern Rockies Lyme Disease Coalition efforts shared their photos to help further […]
Each May, The Mayday Project hosts a rally outside of the Infectious Disease Society of America’s Headquarters in Arlington, VA, to raise public awareness for Lyme Disease and for the damage being done by the outdated and dangerously flawed IDSA Lyme Disease Treatment Guidelines, and to fight for change. Patients travel from around the region […]
We are spread-out, disenfranchised, devastated moms, dads, students, and children…..former participants in lives we now just watch go by.
I heard from another Lyme patient about a week that there would be a Lyme disease study starting in Ravalli County with pediatrician Blaise Favara, and last night it was on the news. When I first heard about it, he study part was quite exciting, although they are not looking at my area. What made […]
Deer Ticks Confirmed in North Dakota Carry Lyme Disease and Important Implications for ‘Non-Lyme’ States
Recent findings published in the Journal of Medical Entomology carry critically important implications for Lyme Disease detection in Montana and other states currently not considered Lyme endemic. Although North Dakota was considered to be outside the range of deer ticks (Ixodes scapularis), researchers sampled nine locations in North Dakota and found deer ticks present at six of them, including […]
My son’s teacher took the time to type and email my son’s resolution from a project in class, and it truly melts my heart. It’s certainly not easy for either of my kids to have a mom with Lyme disease. Christopher’s Resolution ~ (9 years old, 3rd grade) My New Year’s resolution is to finally […]
Lyme disease is under-reported in animals in Montana (and everywhere), as it is in people. But, interestingly enough dogs are routinely tested and treated in areas where people are not. Many people have treated their dog for Lyme disease where I live, which is why it catches many people off guard to hear that the […]
How to Help From Home ~ Philadelphia Candlelight Vigil and IDSA Protest *****October 11 post-event update—call fox and ABC—-see more at bottom of post****** Also see following blog post with Post-Protest links I’ll be adding links to this if I can from the train, otherwise google the references to find the lists!!!
Before I contracted Lyme disease along the Middle Fork of the Flathead River in northwest Montana, I had everything I wanted. I had pretty much reached all of the major goals I had set for myself and then some. Not only had I gotten into (and completed) graduate school, but I had done so under […]
In honor of Public Lands Day, I’m posting this useful diagram from Lyme Disease Association (LDA). Stay safe outside!
Last week H.R. 4701 (The Tick-borne Disease Research Transparency and Accountability Act of 2014) passed the house. The bill is also known as the Gibson Bill, after the bill’s author, New York Senator Chris Gibson. Per Lyme disease.org: H.R. 4701 forms an interagency working group consisting of federal agencies and non-federal partners, including experienced Lyme physicians […]
My hope is that Montanans with Lyme disease will soon be able to receive care in Montana, no matter where they contracted it. There will continue to be repetition of this point in posts here, as well as the issues surrounding that point. I also hope, however, that contractions in Montana will VERY soon be […]
Awareness and education specific to Montana is the primary purpose of this blog. But all Lyme patients benefit from education and outreach, and resources pertaining to states that don’t acknowledge Lyme tend to be pretty applicable in other states in the same boat. There’s no end to the stories of loss and pain brought about […]