Lyme Stories

Debby Jo’s Letter ~ 1,000 Letters Campaign

This is another patient’s letter from the 1,000 Letters Lyme Campaign, posted with permission. See also Kristine’s Letter, Heather’s Letter, My Letter, the 1,000 Letters tab under ‘On-going Campaigns’ or find the group on facebook (The 1,000 Letters Lyme Campaign) to request membership (you can participate without being on facebook).  More stories will be published over time, […]

“Hope and Healing with Lyme Disease” ~ Riley’s Story (Video to Share)

“So whatever we’re in in the moment, sometimes it’s hard to imagine what’s coming….” ~Riley’s Mother, towards the end of the video

Dana’s (Video) Story ~ Sound Familiar?

“Courage isn’t having the strength to go on…it’s going on when you don’t have the strength.” This is the face of courage and hope! (Posted with permission…..scroll down AFTER you watch the video for something you will be very happy to know)

Kristine’s Letter ~ 1,000 Letters Lyme Campaign

This is another patient’s letter from the 1,000 Letters Lyme Campaign, posted with permission. See also Heather’s Letter, My Letter, or visit the group on facebook (The 1,000 Letters Lyme Campaign) to request membership (you can participate without being on facebook).  More stories will be published over time, but these are just a few examples of […]

Heather’s Letter ~ Patient Stories Beyond Montana

The following is one of hundreds of letters written so far as part of an awareness campaign, published with the author’s permission. She has since contributed significantly to spreading of other ongoing Lyme campaigns through social media networking and is soon to embark on the next phase of her lyme journey by beginning care with […]

Asking IDSA for Change ~ Video is Up: Lyme Disease IDWeek Protest Philadelphia 2014

Saturday’s protest included Lyme patients and loved ones from across the country, together to ask IDSA to revise guidelines for Lyme disease diagnosis, treatment, and care. Too many patients are misdiagnosed, their care delayed and lives destroyed. IDSA needs to incorporate current available science…

Please Share Courtney’s Lyme Campaign ~ An 11-Year Old’s Class Project

Please Share Courtney’s Lyme Campaign ~ An 11-Year Old’s Class Project

I’m posting this for Courtney Prew, who is working on a class project raising awareness for Lyme disease for her Mom, Heather Prew, who is fighting chronic Lyme.  They’ve already touched a bunch of Lymies since starting this (and made a bunch of us cry!!!) ~ please help Courtney reach many more!  If you share […]